Abstract
Objectives
We report routinely collected outcome data from an 8-week outpatient rehabilitative therapy program. The aims of the intervention were to (1) reduce symptom severity and (2) improve functional mobility in adults with functional neurological disorder (FND).
Methods
The...
The corresponding author, Katherine Swainston, also had the same role for this study, What psychological interventions are effective for the management of (PPS)? A systematic review and meta-analysis, 2022, Swainston et al
She is listed as based at Faculty of Medical Sciences, Newcastle...
Full title: Psychological interventions to improve pain, fatigue, anxiety, depression, and quality of life in children and adults with hypermobility spectrum disorders and Ehlers-Danlos syndrome: a systematic review
Abstract
Hypermobility spectrum disorders (HSD) affect individuals across...
Who are we?
In 2017, a number of organisations and individuals from across the globe came together to form the International Patient and Public Involvement (PPI) Network. We believe that through the International PPI Network we can join together and enhance the opportunities such a network would...
Registration is available for the next webinar.
Less Studied Pathologies: ME/CFS Research Roadmap Working Group of Council Webinar 7 of 8 - Jan 5, https://roseliassociates.zoomgov.com/webinar/register/WN_c0WYA2I6SRyV_nBGpSWWGw#/registration
Ilene Ruhoy MD PhD posted on Twitter
"Register now...
I would guess the value of this will depend on what use case they see for "a brief screening instrument". If it is intended to definitively identify ME/CFS then yes, that would be problematic; if it is intended as a list of questions to ask before a full investigation of symptoms then it might...
Abstract
Objective
This study examines how Long COVID, chronic conditions, and work outcomes affect the general workforce.
Methods
It examines the prevalence of Long COVID and its associations with chronic conditions, and other sociodemographic characteristics using 2022 National Health...
Not really seen much of anything on Twitter apart from this from Todd Davenport from Workwell,
"If I hear another researcher claim the six-minute walk test is a valid test of cardiorespiratory function in people living with PEM, I am going to scream loudly enough that you are going to hear it...
Full paper isn't yet available so difficult to tell. Quite possible it is further analysis of existing data, and why Fane might be listed as an author.
BACKGROUND The Coronavirus Disease 2019 (COVID-19) caused by the severe acute respiratory syndrome coronavirus 2 virus is an international health concern with substantial morbidity and mortality. COVID-associated cystitis (CAC), presents as new onset or exacerbated urinary symptoms, resembling...
Abstract
Background
As a consequence of their occupation, doctors and other healthcare workers were at higher risk of contracting coronavirus disease 2019 (COVID-19), and more likely to experience severe disease compared to the general population. However, systematic information on post-acute...
Abstract
Debilitating symptoms of fatigue and accompanying “brain fog” are observed among patients with various chronic health conditions. Unfortunately, an efficient and psychometrically sound instrument to assess these co-occurring symptoms is unavailable. Here, we report the development and...
Abstract
Background
An imbalance in affect regulation, reflected by a hyperactive threat system and hypoactive soothing system, may impact physical symptoms in people with rheumatic and musculoskeletal diseases (RMD) and central sensitivity syndromes (CSS), including chronic fatigue syndrome...
Trial By Error: Update on Our Letter Concerning the Prevalence of Functional Neurological Disorder
In August, I submitted a letter to NeuroImage: Clinical concerning inflated rates of prevalence of functional neurological disorder, on behalf of myself and nine colleagues. After the letter went...
Abstract
This article develops the conceptualisation of loneliness by drawing on 42 accounts of myalgic encephalomyelitis (ME). While illness experience is a central concern of the sociology of health and illness, experiences of loneliness alongside contested and chronic illness have received...
Full title: Targeting persistent fatigue with tailored versus generic self-management strategies in adolescents and young adults with a fatigue syndrome or rheumatic condition: A randomized crossover trial
Objectives
To evaluate the use of two self-management intervention strategies for...
Yes, you could probably find examples of CBT being recommended to treat all of those somewhere, but if we are talking mainstream current recommendations,
Yes, of course.
Only as support.
Only as support.
Yes, of course.
While I don't disagree that, on average, women are treated more badly...
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