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The current test for mobility allowance is 20 metres, but as Josep says, it is safely, reliably, and as often as you need to. By inference, that means you can walk more than 20 metres without impactful consequences. I couldn't walk 130 metres, but on a good day I'd probably manage 50. However...

100%. I don't think there's any way I'd have been awarded without this.

I have. I got enhanced rate on both components at the first attempt, though they did do an assessment. I've been clear that I drive an automatic WAV, and that although I use a powered wheelie outdoors for any distance more than a few metres, I can mostly get around inside the house without it...

That is really scary.

I did the Benefits & Work PIP training when I knew my award was due for review, and it was rather good. It's focused on how best to describe the difficulties of living with conditions in a way that meets the PIP descriptors rather than anything else. There might have been one or two bits of...

Jarred Younger's talk made me wonder about subgroups, which are presumably common in all kinds of disease. But in chronic conditions, can subgroups usually be identified reasonably reliably before a genetic susceptibility, a pathological mechanism, or a drug treatment is found? Or is...

I wonder if it's more complicated for some people. I can only walk a few yards—my legs feel full of lead and will eventually buckle if I don't sit down, and I have significant OI. As soon as I rest my legs burn, and it usually keeps me awake half the night. But on other measures I'm not...

And has an honorary law doctorate from Cardiff. :emoji_thumbsup:

Yep, and 'disability' is such a vague and misunderstood term that it's often not very useful. In formal settings I use impairment instead, although I'm impaired (my body doesn't work as well as it might) and disabled (I'm excluded because of my impairments). Some people with significant...

Yeah, I think eligible impairments and disabilities might be different things. There's always been confusion because it's so dependent on context. For instance, when my friend was undergoing cancer treatment she was automatically regarded legally as disabled, even though she had no impairment...

That reads really well, @Trish.

Ooh, thank you, they sound good. :emoji_thumbsup: I've got Flare Isolates, which are amazing because they block all but bone-conducted sound. Even the tiniest version is a tight fit in one of my ear canals, though, so I only use them if someone's playing music late at night (which is rare...

Exactly. And if you're an advocate for pwME and there isn't anyone to work with, you could choose to say so rather than trying to make do with what looks like the next best thing. In theory, one of the charities could put out a call for input from physicians interested in guiding specialist or...

What's most frustrating is that they could earn a lot of kudos—and, by the way, potentially improve their own career prospects—by just getting it right. They could become recognised experts in improving diagnostic services, and advising and supporting recently diagnosed patients according to...

Yep. I can see why a charity might want a relationship with healthcare professionals. They know what's happening day to-day in clinics, what the management and policy issues are, what advocacy approaches are likely to be the most/least effective, etc. But they need to be representative of...

My half crown's on kali.

I think you're probably right.

That was my thought. Organisations with do sometimes—perfectly good intentions—invest a lot of resources into developing new approaches. By the time they're actually rolled out, though, the cost has been 'reviewed'. What started out as face to face engagement has now been reduced to a badly...

Generative AI thinks they look like this. :D

Yeah, I didn't suggest these tools because they were universal loathed at my workplaces, but this is between six and 10 years ago. A lot of the rough edges will have been polished off by now.