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This, this and this again

It would also be good to have samples from those lucky few who have recovered

The public health messaging has been dire in UK. Reactive, confusing and transferring responsibility from the state onto individual. If messages are not concise, simple to understand and readily communicable then individuals cannot make informed decisions. I am.old enough to remember the AIDS...

This. For all his criticism re COVID, he was in charge when operation Cygnus was undertaken and failed to address the resourcing issues it threw up. The lack of readiness was on his watch. That said I know of parents who have met with him re issues with ME and he appeared sympathetic and...

this assumes that medical records are cogent, correct and the specialist has some depth of knowledge about the condition- given the many instances discussed here I am not sure that this is a sound enough foundation to base much upon asking questions is a skill - leading questions is an issue ...

It would be wonderful if Gigi's family could provide an interview - for balance.

Thank you @PhysiosforME the voice of reason is a very skewed narrative

The new FII guidance ( drawn up with input from EC's team) effectively targets CFS - there was a poster excerpt on a thread last year from a training seminar - I can't remember which thread it was, which included police input. The paediatrician delivering the CFS section was the same who...

Given the cognitive dissonance in paediatric research with careers to be maintained - expect a counter article ( for more " balance" and to gain control of narrative) a reframing both

definitely seems to be the case with my daughter and aunt.

Juvenile CFS cast as fatigue - little knowledge of comorbidities or the full range of symptoms , especially if severely affected ( remember EC thinks school is doable for an hour if severely affected) - this may highlight how preconceptions govern treatment. I can't access full article to see...

What a brilliant bit of news to wake up to! Amazingly well done to all those involved. I have shared link as widely as I can- it would be great to hit the 20,000 mark within a few months if we can. I know people have already signed up this morning on the back of the press coverage - we need to...

Good website for graphs https://www.iancampbell.co.uk/covid-19.php

Is it worthwhile providing post COVID cohort with links to virtual conferences past and present ?

I hope all this info is being stored - very useful for any future litigation

with the current focus on ACEs ( Adverse childhood events) and these being pulled into every sphere of life childhood trauma is both big business and an Elastoplast for all life's ills. It's a distraction - there is no question that some children experience trauma that deeply affects them...

Sorry for the diversion, but the tweet below highlights why this review is so critical. This also happens to children. Much guidance / advice references Cochrane reviews , it gives the authority as being a solid base for those unaware of issues ( 2 doctors in wider family independently...

I havnt read the paper, so apologies. What kind of fat was involved , and what proportion of fat to other macros . What proportion healthy v unhealthy fat? Was pancreatic/ liver function also checked?

@Tilly Poster from FII seminars - I think you may gave an image of it?

This is already in place. Crawley' s team drew up the FII guidance which actively targets CFS and delivered seminars to police, social work....