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Perhaps we should have a thread for what an ME/CFS bodysuit might comprise/ seek to capture . Surely worthy of a thesis study somewhere ?

One aspect of the PSP which will be useful going forward is that all data will be made available for use by others. There were many responses to the initial survey that were outwith the scope of the project - concerns re medical education , difficulties accessing benefits , issues accessing...

I would guess the latter option ....

I've often wondered of there's an ME/CFS bodysuit available. ( you get pregnancy ones which effectively add the weight and size of an average 8 month term - works wonders for any unsympathetic partners and used to great effect at ante natal classes) Researchers should have to spend a couple...

I havnt read the paper so could be off track but could the antidepressants not be being primarily used for neuropathic pain?

Example of blind threadc

Blik is very active on Twitter which may be both helpful and a hindrance . The catch 22 of whistleblowing. There are a lot of jaw dropping finds but very few retraction.

https://www.psp-me.co.uk/

Hopefully they will improve. Good to hear that there are some clinicians who have experience. It us sometimes hard to flag up things without sounding negative though .

I gave not yet read the paper ( not enough coffee consumed yet) When we did some testing after my daughter had been ill for a year b3( niacin) and glutathione were both low. Niacin is an anti inflammatory molecule - perhaps being low suggests higher than normal levels of inflammation? Eta...

Suspect it's the vagus nerve effect..

Thank you. I expect for her sister its particularly concerning being a nurse and watching this pan out. The Ed Yong article in The Atlantic recently posted probably sums up the lack of belief and " penny dropped" feeling for her.

I have just had a thank you but perhaps a little guarded. My sister in law asdvises that both her mum and sister are " lucky " enough to be at the only " covid" specialist department in Stockholm and part of the research there. I don't know if that is good or bad .

And perhaps that might just present more of a problem ......

Thanks @mango Disturbing stuff

https://www.sciencealert.com/molecule-found-in-poisonous-plant-blocks-all-sars-cov-2-variants-in-cell-cultures

Thanks again :) I' ll forward on.

Thank you.

My brother and law and his family live outside Stockholm.( jarfalla) His wife is Swedish . Both her mum ( retired) and sister ( a nurse) have had long COVID since having COVID in March 2020. Neither is getting better .Her mum was hospitalised twice and still suffers lung issues. From time to...

Has anyone done this course ?