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Do you think that the 'not fit for purpose' angle would be a good way to get out story covered, though, and if so, can you think of which other journalist would get attention for it in the UK? (Or maybe it's just not a goer.)

Aren't the implications of the story much bigger - that Cochrane isn't fit for purpose?

How about if we send it and issue a press release about it, and ask George Monbiot and David Tuller to cover that story?

I wonder if the ideal would be a document that provided a menu of simple statements, such as, 'I have orthostatic intolerance, a form of dysautonomia, that means I need to lie flat for most of the time and become much more ill if I don't', where people could delete the ones that don't apply and...

I'm surprised that patients are being sent into hospital clutching such lengthy documents.

I'm also thinking that the publication of her book is perhaps providing a teachable moment. Even the Daily Wail is applying some critical thinking.

I haven't read the book, just the quotes and some of the media accounts, but I think that if anyone were to raise it with me I would simply quote this example of her approach, which @Lou B Lou quoted from iNews : And then I would point out what would go through one's mind about Dr Emoto's...

Maybe Dr Bansal would, if @Binkie4 doesn't?

That would be fantastic, and hugely valuable. I agree, but having a name on it like yours would really help get it taken seriously. That's more like it! :)

I agree. I can't imagine handing this over, especially because the 90% that doesn't apply to me would drown out the 10% that does. It says on the MEA website that you should choose the useful sections to show, but most of each of the sections wouldn't apply. I wonder if the best use for it would...

I remember reading early on that that wouldn't be expected to happen but I can't remember why!

Thanks for posting, @hotblack. The article is over my head but some strong (and interesting) claims are being made: When nasal vaccines have been discussed before, I've seen optimistic claims dismissed but I don't know enough about the science to make a judgement. I'd love to believe the...

I agree with this. I wonder if an alternative phrasing could be something like: The ME/CFS acronym, rather than trying to find perfect words, reflects a desire for a pragmatic clinical term that recognises, but also transcends, historical medical views that the illness is mainly one of fatigue...

This is interesting but do you think that this is well recognised outside a fairly small group? I've been surprised to come across the idea recently and wonder whether even patients better informed than I am (not difficult) would be aware of it, let alone the GPs etc. that we have to deal with.

Those are good! I wrote and deleted an almost identical paragraph, including saying it would be better if we could name this thing after someone to avoid all the other issues, but I think it's too late to change the name - and that the time will be when we get clarity on mechanism in some...

If he'd be well known to your target audience, who would be intrigued by your mention of him, it might be good to keep him in, but would he be known to the younger doctors? Or at least to whatever age band / level of seniority you're aiming at? I'm wondering whether, since you mention him on...

Trying to come up with a title that flags up more clearly what the article is about. 'ME/CFS: Time to recognise it as a typical syndrome concept without pretending that we understand it or know how to treat it' Anybody got any advance on that?

On a second read of this, I'm wondering whether this is true: I may be taking this weirdly out of context due to brainfog but I don't think that 'ME/CFS' has this implication. I think you make a very good argument that a term that names our disease should indicate a syndrome of symptoms...

@Jonathan Edwards - Is there a particular reason you mention Robert Souhami in the opening to the article? I'm not your target audience but I've never heard of him and wonder whether he's a bit of a stumbling block to other readers at the beginning.

Totally happy for them to be insulted. Well earned.