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That's good to see, but having attended no end of hybrid meetings via Zoom and found that those of us online have been treated like children of a lesser god, I'd recommend immediately posting a message in chat asking how the organisers will make sure that those too sick to attend in person are...

But it it's not on their radar, how are they managing to hold on to the belief that it's at least partly psychosomatic when faced with patients who don't have any obvious psychological dysfunction? And are getting severely disabled after a viral illness, which surely screams 'biomedical', not...

Wow, that is a depressing result. ( It would be interesting to interview doctors who have developed ME-style Long Covid to really go into some depth about why doctors find it so easy to believe this stuff, because presumably most of them did, before they got sick.

Might be worth turning up just to point out that it's an invalid meeting, though, and then leave...

I'm so sorry that PwME are encountering these attitudes so often! The question is, though, is there any survey data?

I'm sorry you've had such a horrible experience! But I'm not sure that most of us would know. For the most part, I have no clue what my doctors think because we simply don't discuss my ME. In over 40 years, encountering many, many healthcare professionals, not one doctor has ever said to me that...

Any thoughts about taking this forward, @Jonathan Edwards? Could people here help?

I'm not sure that would reflect the percentage of doctors who hold to that model. I find it weird that this is something that impacts the lives of PwME so much, but we walk into every new clinical encounter with no idea of the likelihood that we're dealing with a doctor who isn't facing reality...

Ooh, thanks, @Sean. Looks good.

We know that the various 'it's not a disease' models (BPS, MUS, predictive coding, etc. etc. etc.) of ME/CFS have been prevalent but do we know how prevalent? And do we know how/whether that has been changing over time, with the PACE scandal, lots of doctors getting Long Covid, etc.? Can we go...

Thanks - I wish the UK was this sensible!

Can any member force an item to be covered under AOB? I have no clue about the rules that govern meetings.

This ONS page shows some Covid test result graphs over the course of the past year, based on what seems like fairly scrappy surveillance. The monthly incidence looks weird - I can understand a winter peak but not the summer one.

Is there any precedent of a medical charity that has gone rogue being successfully tackled by patients? I know we're in a BPS hellscape but we surely can't be the only patients ever to be badly served by a charity. There are weird ideas and vested interests all over the place. @dave30th - Did...

Thanks, Kitty. My concern is that even though decisions ought to be void in such a case, I'm not sure that anyone outside the same group of people at the MEA who would have chosen to run an unconstitutional meeting would be in a position to treat those decisions as void in practice.

Without hyperventilating. Just thinking. Since the mind is so all-powerful...

If you're correct, what would be the consequences if the MEA went ahead with its AGM, if the MEA choose to ignore the issue? Would PwME or others who are unhappy about it able to impose any consequences?

I'm still shielding from Covid as best I can but need to book a medical appointment for some treatment within the next six months during which I'll have to be without a mask. I'd like to book that appointment for a time when there will be less Covid about, but now that national Covid...

I would like to see an on-the-spot demonstration of this idea that people can create their own symptoms with their minds. I'd like to see a proponent of this idea stand in front of me and make him/herself faint

Is there a useful distinction to be made between things and processes? It sounds as though with RA, you discovered a process that involved molecules that you already knew about (?), whereas prions and germs where things that weren't known about until people looked in the right places with the...