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I don't see how that could be - each patient would only report one age of onset and wouldn't appear twice in the graph.

I'll wait and see what @JaimeS says - I've got a bit confused! :)

I think it's good to have the follow-up letter here, but if they're announcing a new action, I think it would be good to have an additional, new thread so that people who are no longer following this thread realise that there's something that they should be doing. I'm not sure if people have...

I haven't been following this - does the article (at the link) call for new actions and so deserve a new thread?

I'd expect that to look more like a blur than peak.

See post #48 for abstract. Link to paper ------------------------------------ @Jonathan Edwards, I remember that in the other place several of us had a long discussion about what could explain the two peaks in onset-age for ME/CFS. I just saw the graph that we were discussing reproduced in...

Has everybody seen that the MEA kindly provided a link to the slides from the talk? https://www.meassociation.org.uk/wp-content/uploads/ME-Auckland-Karl-Morten-Presentation-12.12.18.pdf

@Jonathan Edwards, what is motor fatigue and why do you think that should be the focus?

I couldn't even make that much sense out of it. I wonder if he was pointing at the slide or doing something else that would have made it clear to the audience. I thought he was referring to two blood tests where one did something and the other didn't but I couldn't tell which was the Acumen test.

I couldn't quite make sense of what Dr Morten was saying about this in the video.

Thanks! I'll see if I can process it further.

Is there a way to automatically generate a transcript of this? It has the option for closed captions but the instructions I've found on the Net for generating a transcript from them don't work.

Lots of interesting stuff here. Is Karl Morten on your list for an S4ME Q&A too, @Andy?

@EspeMor - this is great news but 'Don’t forget you can use ME Action’s toolkit pinned on top to contact your MP to ask him to attend the debate when it happens'? There are women MPs too! In fact, it's the centenary this year of when the first women got the vote in the UK and the first female MP...

Possibly 25 years. :) I have a memory of lying in bed reading the AfME newsletter and reading about this mysterious but proper-sounding stuff, interferon-alpha. Although that sounds too precise to be a genuine memory and one that my brain hasn't helpfully just this minute supplied...

I'm sure I was reading in ME charity newsletters 30 years ago or so that having ME was like having interferon-alpha.

If all this is happening in the brain, though, and JY's model is that this is the cause of ME/CFS, what about the findings in the muscles (or aren't there any we can trust) and the CPET results?

This is all way over my head and I still haven't watched the video but so it would be great to make progress on getting to the bottom of the mechanism, with questions like these: Can we contact Jarred Younger? Can we invite him to a post-publication discussion of his work here on S4ME? (Not...

In other words, they need everything - follow-up of patients, education of doctors, an understanding of the condition, effective treatments...

Solve do seem to post their webinars on YouTube so I'll look forward to seeing this one - it sounds very interesting.