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I suspect you'll find showering to be near the top of the most strenuous activities.

What they say: your symptoms are very real, ME/CFS is not all in the mind. What they do: design clinical trials to test whether changing the patient's thoughts and beliefs about symptoms will lead to a recovery from the illness. Then, when the results are poor, they switch outcomes to obtain...

When I was younger and already ill, I was treated for low iron levels. It had nothing to do with a low iron diet or not eating enough.

RNF123plays a role in Class I MHC mediated antigen processing (and other things).

Would it be possible to seek funding from other sources for the purpose of transparency in research or some important cause like this? There have to be funds for this available somewhere. If not, they should be.

It's £4 over the goal now. Congratulations!

Only £265 left to the goal.

It would be good to sequence the genome of families with multiple ME/CFS cases (especially if other unexplained chronic illness is also present). We could learn what genetic diseases are misdiagnosed as ME/CFS which will be very helpful for those patients where this is the case. It could be...

It's even worse than this. Their belief system also includes the belief that negative feedback from patients can be safely ignored. After all, the illness is the result of negative thinking, therefore any negative feedback from patients is just a demonstration of the negative thinking that led...

Maybe Fluge and Mella could weigh in on these comparisons of CBT between cancer and ME.

The weather isn't even particulary warm. It seems to be the adaptation process to warmer weather that is difficult and slow. Eventually I get used to even hot weather. Or maybe there is something else going on metabolically or immunologically in response to the warmer spring. A shift towards a...

For me, in some situations with certain symptoms, upping my salt intake is quite effective at reducing symptoms. I had to do this in the last month, presumably due to the warming weather. The symptoms that it improves are: fast heart rate, feeling stressed, chest pain, dizzy, orthostatic...

How would one determine that the amygdala and insula are being retrained? Has anyone actually checked that the treatment has a specific effect on the amygdala and insula?

During the first session, one group receives: While the other receives: So it's already clear what is expected of patients in the other group. Can you guess which one the good treatment is? :laugh:

I looked this test up and tried it. Upon completion, I stood up and began walking and had orthostatic hypotension, or in plain English my knees became weak and I nearly fell to the ground. Repetitive movements of this kind tend to trigger it. Therefore the authors may be recording the effect of...

Other than biomarkers, it would also be useful to establish a different approach to care for ME/CFS patients than the BPS approach.

The lack of biomarkers and practical diagnostic tests is the root of so many of our problems.

The idea that resistance to psychosomatic explanations for illness is due to stigma and not any legitimate reasons is such a typical argument by proponents of psychosomatic explanations. As if it's only people not wanting to admit that their illness is caused by emotions, and nobody disbelieves...

My theory why we see so much psychologizing of chronic illness: Healthy people often don't understand chronic illness. To them it looks like weird behaviours, people letting themselves go, silly and obviously unjustified anxieties, catastrophizing. They cannot comprehend the symptoms because...

I suspect Garner is rewriting the history of his illness. He prefers a story of how he defeated the illness by overcoming his negativity over a story of how he was genuinely terrified and helpless for a few months and then by sheer luck improved. So now he comes across as hypochondriac because...