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If fatigue and muscle weakness are clearly distinct, why did Ramsay say that the way to differentiate between ME and other postviral fatiguing illness was illness duration and symptom variability throughout the day, rather than one group having muscle weakness and the other having fatigue?

PEM as per Ramsay could be summarized as muscle fatigueability weakness, where PEM as per the ME/CFS concept could be summarized fatigue, sickness and symptom amplification. Is muscle weakness always clearly distinct from fatigue? When I have what I consider severe fatigue I'm unable to exert...

If after the collapse of the CBT/GET approach we see an increase in biomedical research as well as more competent care, I would interpret this as evidence that the collection of ideas associated with CBT/GET prevented progress. I expect to see an increase in research and better care. One way it...

As child, I was vaguely aware that chronic illness existed. In other people, distantly, for example in people over the age of 60, who had to take pills for their heart. But not in the close family. So when my mother was chronically ill, I didn't view it as chronic illness but as some weird...

We're being asked to believe in magic, or that is how it comes across. How would this wonderful self-suggestion work? Also, if patients don't have a real disease because there is insufficient objective evidence, why are we being asked to believe in other things without any evidence, like this...

They are so out of touch with reality it's astonishing. And these privileged professors have such a need to be victims when in a debate with sick patients.

NaV = voltage-gated sodium channels. From https://www.nature.com/articles/srep42810 You're right.

I didn't think of it that way. I thought the "recovery process" was a slow return to normal from what is a state of altered physiology meant to maximize survival chances in infection or injury. In the early years of the illness I've often felt like I was recovering, but then at some point along...

If PVFS and ME/CFS are the same thing, except that ME/CFS lasts much longer and is commonly lifelong, then perhaps the difference is just some factor that prevents the recovery process from completing.

Speaking about funny neurological symptoms, what is it when for a very brief moment (the duration of the blink of an eye), I feel like my brain is distracted and very busy with something, and then there is the sensation that something about the outside world is different even though everything...

RAP is the blood pressure in the right atrium of the heart (one of the four chambers in the heart). I'm not sure how important a healthy blood pressure is in there but it seems like a disturbingly large difference between patients and controls. Something is very wrong. I'm not sure I understand...

There's a lot of truth to this in my opinion. I apologize in advance for giving such a disgusting and explicit description of what this is based on: I tend to have episodes of diarrhea with coincide with bad mood and generally feeling intensely unwell. Once the last load of diarrhea is expelled...

Pompe's disease is glycogen storage disease type II https://en.wikipedia.org/wiki/Glycogen_storage_disease_type_II

The claim is questionable since both of these are retrospective studies. https://pubmed.ncbi.nlm.nih.gov/19188532/ https://pubmed.ncbi.nlm.nih.gov/22408134/ They may simply be measuring the effect of illness severity on the current mood of patients which can influence how past events are rated.

Why not be loved by saying these magical words: we got it wrong with ME and want to make it right now. Let's talk how to make this happen. They won't do this because they're trying to maintain the illusion of being perfect.

By internal inconsistent theories do you mean something like continuing to propose autoimmunity in ME even after the null results from Rituximab trial, without being able to explain how it could still be autoimmunity? Or is it more like the CBT/GET illness model that contradicts itself by...

Is it babble or is there some real insight? If you have to ask the question it's probably babble.

Coming to accept one's disability, and "coming out" as having a controversial illness is psychologically difficult but also important. And I have problems with self esteem due to achieving so little in life. It's unfortunate that psychologists and psychiatrists seem to generally have so little...

Such a psychologically healthy message.

https://www.tandfonline.com/doi/abs/10.1080/21641846.2021.1876613?journalCode=rftg20