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  1. John Mac

    Proposal for Canadian CRC to join forces with US NIH's 3 CRC's to research ME

    https://www.researchnet-recherchenet.ca/rnr16/viewOpportunityDetails.do?browseArc=true&fodAgency=CIHR&org=CIHR&progCd=10866&view=browseArchive&language=E
  2. John Mac

    May 3-5 2018: Canadian conference on ME/CFS research priorities, Montreal

    News update, link to program on the page https://www.newswire.ca/news-releases/experts-gather-in-montreal-to-develop-international-research-agenda-on-myalgic-encephalomyelitischronic-fatigue-syndrome-680811321.html
  3. John Mac

    (Not a recommendation) Bath University, Volunteer for research investigating Chronic Fatigue Syndrome

    I wouldn't mind volunteering for this as long as they allowed me to film them filming me and when it was over we could sit down and watch my film and they could describe their thoughts and feelings and emotions on having wasted their careers.
  4. John Mac

    Wesselys Mental Health review could also replace Mental Capacity Act

    I think it's a case of creating demand for their own services at the cost of the taxpayer (and the people sectioned). There simply aren't enough people prepared to hand over their own money to sustain such a growing bunch of fraudsters.
  5. John Mac

    Are the effects of cognitive behavior therapy for severe fatigue in cancer survivors sustained up to 14 years after therapy?

    I honestly think that CBT is just a service offered by psychiatrists to doctors allowing them to get rid of patients who they can't help but who keep coming back to them asking for help.
  6. John Mac

    New York State: Department of Health info page

    This page is listed as being updated April 2018. Not sure what has been changed but there are some good points in it. https://www.health.ny.gov/diseases/conditions/me-cfs/
  7. John Mac

    Devastating ME leaves teen girl "unable to leave the house"

    https://www.liverpoolecho.co.uk/news/liverpool-news/devastating-leaves-teen-girl-unable-14534145
  8. John Mac

    David Tuller's new crowdfunding campaign (April 1, 2018)

    The Faculty Lounge is covering the appeal. http://www.thefacultylounge.org/2018/week14/index.html
  9. John Mac

    PACE trial TSC and TMG minutes released

    So Action for ME has no record of who was representing it during the biggest most expensive study into ME? Are charities not obliged to keep records?
  10. John Mac

    Dutch Health Council on ME/CFS tomorrow on national news

    Google Translate: 30 March 2018: UWV draws conclusions from the Health Council on ME Insurance physicians at the UWV must take into account the advice of the Health Council on ME / CFS: "Insofar as insurance physicians consider CGT and GET as an effective therapy and a client is more or less...
  11. John Mac

    Circulating extracellular vesicles as potential biomarkers in CFS (2018) Castro-Marrero et al

    From a Cort blog https://www.healthrising.org/blog/2017/09/30/three-nih-funded-mecfs-research-centers-controversy/
  12. John Mac

    Solicitation for Applications from Individuals Interested in Being Appointed to the Chronic Fatigue Syndrome Advisory Committee

    ME Action is now highlighting these vacancies https://www.meaction.net/2018/03/26/cfs-advisory-committee-seeks-voting-members/
  13. John Mac

    Tinnitus poll: Do you experience it?

    My tinnitus only affects my right ear and is the only predictor of a flare up in my ME symptoms. When I go to bed and I can hear the buzzing in my right ear I know I have overdone things that day and will be ill when I wake up in the morning. The buzzing will remain for a few days but will...
  14. John Mac

    Dutch Health Council on ME/CFS tomorrow on national news

    Van der Meer has responded to the report https://www.ntvg.nl/artikelen/gr-rapport-over-chronische-vermoeidheidssyndroom/abstract
  15. John Mac

    Solicitation for Applications from Individuals Interested in Being Appointed to the Chronic Fatigue Syndrome Advisory Committee

    Anyone interested in applying? DEPARTMENT OF HEALTH AND HUMAN SERVICES Solicitation for Applications from Individuals Interested in Being Appointed to the Chronic Fatigue Syndrome Advisory Committee https://s3.amazonaws.com/public-inspection.federalregister.gov/2018-05833.pdf
  16. John Mac

    Research Associate (FITNET-NHS Trial)

    https://uk.linkedin.com/jobs/view/research-associate-fitnet-nhs-trial-at-university-of-bristol-625224811
  17. John Mac

    David Tuller - Trial By Error: The Dutch Review; My Trip; Bristol's Silence

    Let's hope the final version is close to the draft
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