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  1. John Mac

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    http://www.sciencemediacentre.org/expert-reaction-to-study-investigating-a-potential-biomarker-for-chronic-fatigue-syndrome-me/ To avoid giving them traffic http://web.archive.org/save/http://...al-biomarker-for-chronic-fatigue-syndrome-me/ Science Media Centre: Expert Reaction Prof Chris...
  2. John Mac

    UK Parliament debate - 10 Years of the Work Capability Assesment 24 April 2019

    To highlight the issue purely by coincidence this is on todays Liverpool Echo website about a man who was refused ESA after attending a WCA by getting a pass out of hospital. He has subsequently died. Edit: He had to leave hospital to appeal the decision to refuse him ESA. He won the appeal...
  3. John Mac

    Validation of impaired Transient Receptor Potential Melastatin 3 ion channel activity in natural killer cells from CFS/ME, 2019, Cabanas et al

    For easier reading Background Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis (CFS/ME) is a complex multifactorial disorder of unknown cause having multi-system manifestations. Although the aetiology of CFS/ME remains elusive, immunological dysfunction and more particularly reduced...
  4. John Mac

    United Kingdom: Isle of Man ME/CFS and Long Covid services (Manx, ME Support IOM)

    That is a danger but as @Hutan points out with such a small population at least the individuals making the decision would be known and hopefully accountable for their decision, unlike the UK.
  5. John Mac

    United Kingdom: Isle of Man ME/CFS and Long Covid services (Manx, ME Support IOM)

    Merged thread https://www.bbc.co.uk/news/world-europe-isle-of-man-48065779
  6. John Mac

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    Article updated (Adds David Tuller’s academic position at Berkeley) https://uk.reuters.com/article/science-social-media/update-1-online-activists-are-silencing-us-scientists-say-idUKL5N2202P0
  7. John Mac

    Cochrane ME/CFS GET review temporarily withdrawn

    Alarm bells ringing already, if the GET review isn't withdrawn by the end of May it may never be.
  8. John Mac

    Periodic Paralysis, myotonia, channelopathy and ME

    The BPS lot believe you can cure hardware problems by rewriting the software, even when the evidence points to a problem in the power supply.
  9. John Mac

    Evidence of Clinical Pathology Abnormalities in People with ME/CFS from an Analytic Cross-Section (2019) Nacul et al.

    https://www.mdpi.com/2075-4418/9/2/41
  10. John Mac

    Petition, change.org: Define "Melvin Ramsay's Myalgic Encephalomyelitis (M.E.)" as own distinct disease from CFS

    I realise this may be controversial but it goes into it quite deeply, maybe too deeply. https://www.change.org/p/dr-paul-chrisp-define-melvin-ramsay-s-myalgic-encephalomyelitis-m-e-as-own-distinct-disease-from-cfs
  11. John Mac

    UK House of Lords/ House of Commons - relevant people and questions

    Chris Williamson Labour, Derby North To ask the Secretary of State for Health and Social Care, if he make an assessment of the potential merits of ring-fencing funding for high-quality ME research as the Government has done for dementia and brain cancer. Caroline Dinenage Minister of State...
  12. John Mac

    BBC: Precise brain stimulation boosts memory

    https://www.bbc.co.uk/news/health-47852578
  13. John Mac

    UK NICE - Projects to support the development of the NICE guideline on ME/CFS: diagnosis and management

    Please note: You must return your proposal by 5pm on 24th April. 16 days notice! Isn't that a bit of a short notice to produce a project?
  14. John Mac

    Medically Unexplained Symptoms (MUS): Faults and Implications Michiel Tack 2019

    https://www.mdpi.com/1660-4601/16/7/1247/pdf @Michiel Tack
  15. John Mac

    A Validated Scale for Assessing the Severity of Acute Infectious Mononucleosis, 2019, Jason et al

    Covered on USA News website https://www.usnews.com/news/health-news/articles/2019-04-02/severe-mono-infection-may-raise-risk-for-chronic-fatigue-syndrome
  16. John Mac

    Does anyone here get worse in relation to stress?

    I would have thought any illness would have it's symptoms made worse with stress
  17. John Mac

    Hyperactivation of proprioceptors induces microglia-mediated long-lasting pain in a rat model of chronic fatigue syndrome - Mar 2019 - Yasui et al

    Maybe this is the childhood abuse the BPS crowd are convinced we all suffered, but we've all erased the painful memory of being trapped in a cage.
  18. John Mac

    A SWINDON MP has welcomed the move to ban adverts claiming to cure autism. Mentions ME/CFS.

    https://www.swindonadvertiser.co.uk/news/17529644.robert-buckland-mp-welcomes-move-to-ban-cease-therapy-adverts-claiming-to-cure-autism/
  19. John Mac

    OMF Funds ME/CFS Collaborative Research Center at Uppsala

    Received this email from OMF
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