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2018 post by Sarah. Click on the arrow to read more.

That radio interview was in 2010 and so perhaps Findley has learned something since, but he was running a CFS diagnostic and management clinic in 2001 when he wrote the letter about Sophia. So, if he was paying any attention at all, he definitely should have known better by 2010. Maybe...

@Russell Fleming, can you please explain why Professor Findlay was thought to be an appropriate person to be patron of the MEA. It's extremely disappointing when the organisations set up to promote the interests of people with ME/CFS and who take funds from people with ME/CFS to do that, act in...

What a strange framing of ME/CFS. Sort of accurate but so open to various interpretations. Dr John Greally seemed to talk about ME/CFS carefully and accurately, so this is particularly odd. The kernl site doesn't make things clearer. There's talk of hundreds of genomes in some places and...

A post about some research on blood clotting in Long Covid has been moved here: Persistent clotting protein pathology in Long COVID/PASC is accompanied by increased levels of antiplasmin, 2021, Pretorius et al

A research team from Stellenbosch University have been looking at blood clotting in Long Covid:Persistent clotting protein pathology in Long COVID/PASC is accompanied by increased levels of antiplasmin, 2021, Pretorius et al

https://cardiab.biomedcentral.com/articles/10.1186/s12933-021-01359-7 Open Access Etheresia Pretorius, Mare Vlok, Chantelle Venter, Johannes A. Bezuidenhout, Gert Jacobus Laubscher, Janami Steenkamp & Douglas B. Kell Persistent clotting protein pathology in Long COVID/Post-Acute Sequelae of...

Several posts have been moved to a new thread: Compression Garments

We also have a Members Only thread on a related topic: Compression Socks any recommendations in the U.S.? And discussions about compression socks.

A number of posts about compression garments have been moved here: Compression Garments

It's nearly an hour long, and it's pitched at people with a pretty low level of scientific understanding (e.g. a bit of time is spent on 'what is a gene?'), so here's a summary: Raelan Agle and Liz Carlson are ME/CFS advocates. Liz has a website called healwithliz.com They are speaking with Dr...

Now I've read the paper. I do think continuity of care is a good thing, so I can understand why the researchers might want to produce some evidence in support of that. And there were some adjustments - for the patient's level of education, for their level of health (but not mental health)...

I haven't read the paper, but surely assuming a long association with one GP as being causal for lower mortality and the rest is way too simplistic? Thinking about what might cause someone to not have a long association - * housing insecurity - people who own their own home will tend to have...

@Action for M.E., could you please explain how a study done by PD White, and on central sensitisation, was funded by an ME/CFS patient charity? Given White's history, no ME/CFS study that includes him as an investigator can be trusted. He simply has too much at stake to achieve the required...

And of course, I should have said: This whole construct of agreeable people and disagreeable people is a nonsense. Because you can't properly categorise people on the basis of a handful of questions that can be interpreted in different ways that are answered at one point of time. And, very...

White, out of 'retirement' to poke people with FM and CFS until they say it hurts. Not surprised. I'm not even sure about this idea that people with ME/CFS have lower pain thresholds, let alone the CSS interpretation overlaid on that idea. From memory, the experimental results, even when done...

After treatment, the brainwashing group did have a slight reduction in reported cannabis use, but they were still using twice the amount used by the saline injection placebo group, and 4 times the amount used by the control group. And yes, re the opioids, we know the scale is number of pills...

ha! Agreeable? You’re More Likely to Benefit From Placebo Your personality affects your likelihood to experience placebo effects. https://www.psychologytoday.com/us/blog/you-illuminated/201302/agreeable-you-re-more-likely-benefit-placebo Whereas I'd say the people scoring high on the...

I wonder if showing a relationship between 'agreeableness' and subjective improvements from placebo (or treatments that are essentially placebos) might help? Agreeableness is one of the Big 5 personality traits. So, there are tools to measure it. If it could be shown that more agreeable...