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  1. Sean

    A 4-day mindfulness-based cognitive behavioural intervention program for CFS/ME. An open study, with one-year follow-up, 2018, Stubhaug et al

    She emphasises that mild degree is 50% reduction of activity compared to before. A 50% reduction in activity capacity is 'mild' ?
  2. Sean

    David Tuller: Trial By Error: HRA Report Does Not Vindicate PACE

    From some old notes about Wessely's role in it PACE: The PACE trial identifier says: "(S)taff at the Clinical Trials Unit (CTU) [...] will be primarily responsible for randomisation and database design and management [...], directed by Professor Simon Wessely, in collaboration with Professor...
  3. Sean

    Trial By Error: And Another Prebuttal…

    Such modesty.
  4. Sean

    Pacing - definitions and sources of information

    Worth highlighting.
  5. Sean

    'Consumer-Contested Evidence: Why the ME/CFS Exercise Dispute Matters So Much' PLOS Blog post by Hilda Bastian

    Generally a pretty good and welcome article. Thank you, Ms Bastian. A couple of quibbles: Well, they asked a single self-report question about it, which I wouldn't call a reliable measure. Pacing is not about exercise, it is about managing existing limitations on daily activity. If pacing is...
  6. Sean

    UK Health Research Authority defends PACE. Answer to MP's question, February 2019.

    So the first thing they should have done was establish the existence and nature of deconditioning, and measure activity. The assumptions are always the first thing to test. Progress is usually made in science by abandoning an unjustified assumption or preconception. But they have never tested...
  7. Sean

    UK Health Research Authority defends PACE. Answer to MP's question, February 2019.

    It's an important step in the right direction. Credit where it is due. Still one more important step to take though: There is no methodologically sound evidence that any psycho-social treatment actually delivers any rehabilitative, let alone curative, benefits. It may (may) offer some generic...
  8. Sean

    David Tuller: Trial By Error: HRA Report Does Not Vindicate PACE

    Bit hard to have faith in the HRA when they get the availability of data issue so wrong.
  9. Sean

    "Body Reprogramming: Patient guide for recovery using the Hyland model"

    Well it makes a change from being called a dangerous activist, I guess.
  10. Sean

    Trial By Error: Some Thoughts About an Upcoming Article

    Entirely deliberate on their part. They have planted the most appallingly outrageous smears into every level of the debate, including portraying themselves as both the victims and heroes of the story, with minimal risk of those smears being properly tested, let alone being held to account for...
  11. Sean

    A general thread on the PACE trial!

    The peasants are revolting!
  12. Sean

    Trial By Error: Some Thoughts About an Upcoming Article

    Agree with those who think that this forthcoming article is a sign that the work done by @dave30th is doing serious damage to the BPS clown show. Also agree that we should wait and see what it actually says, and carefully consider our responses. Quite possible that we could use this to further...
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