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  1. Sean

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    These are the exactly the sort of people we need onside. Patients can never force the change on our own, we don't have the political clout. It needs people with authority to force the issue at the senior levels of the profession. Right questions.
  2. Sean

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Yep, it can be twisted to suit any situation, and explain away any contrary facts. It is unfalsifiable.
  3. Sean

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    They also need to be realistic about why this situation and pressures even exist in the first place.
  4. Sean

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    At this rate I will still be convalescing on my death bed.
  5. Sean

    CBT for CFS Therapist Manual PAEDIATRIC CFS TEAM, ROYAL UNITED HOSPITAL, BATH, UK Loades, M.E. & Starbuck, J. | 2020

    That diagram just proves that they have not changed their act one bit in the 30 years since I first became aware of it. They just keep doubling down. Why is so much of mainstream medicine (in the UK at least) still bending over backwards to give them the benefit of the doubt? It's nucking futs.
  6. Sean

    The use of the labels ME, CFS, ME/CFS

    I think it is very premature to definitively distinguish between ME and CFS. There just isn't the evidence to do so safely. That smells to me like a bone to the psychs to shut them up. 'Let us have the ME patients, and you can have the CFS patients.' Not acceptable to condemn another...
  7. Sean

    A Framework for Understanding the Pathophysiology of Functional Neurological Disorder, 2020, Hallett et al

    ...including determining how pathophysiological abnormalities arise as a consequence of etiologic biopsychosocial factors of FND. Don't you think you should establish the causal direction first? The utter certainty in this piece is disturbing. This cannot end well. :grumpy:
  8. Sean

    Anyone get root canal (either before or after ME onset)?

    Also because the longer you leave it the more of the tooth is damaged, which makes it weaker, and there is only so much a dentist can repair. I recently had to get an old root canal tooth removed due to it splitting near the gum, which is not repairable. Unfortunately I cannot afford crowns...
  9. Sean

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Paul Garner on long haul covid 19 - Don't try to dominate this virus, accommodate it This. We don't set the rules of engagement with this virus, it does. All we can do is learn them and stick to them.
  10. Sean

    CBT for CFS Therapist Manual PAEDIATRIC CFS TEAM, ROYAL UNITED HOSPITAL, BATH, UK Loades, M.E. & Starbuck, J. | 2020

    1. The recovery journey takes a matter of months, or a year, or perhaps longer. How convenient.
  11. Sean

    Resources for help getting food during quarantine and safe handling of food

    This. It is a multi-axis assessment. Plus whether the testing is for harmless viral particles from a degraded and 'dead' virus, or potentially harmful viable whole virus.
  12. Sean

    BPS attempts at psychologizing Long Covid

    Yep. It's going to be another disaster. :grumpy: The UK medical establishment have lost the plot on this stuff.
  13. Sean

    CBT for CFS Therapist Manual PAEDIATRIC CFS TEAM, ROYAL UNITED HOSPITAL, BATH, UK Loades, M.E. & Starbuck, J. | 2020

    For many young people with CFS/ME, recovery is not about a ‘going back’ to who they used to be, but a ‘going forwards’ to a new version of themselves whom has been through what is often reported as an enriching and developing experience, and who has progressed developmentally too What a bunch...
  14. Sean

    Demographic and health-related factors associated with reduced work functioning in people with moderate [MUPS], 2020, van Tilburg et al

    Or: That's better. And who knew severity of distress, and propensity to get depressed, would increase for people as the burden of physical symptoms increased? If they are looking for psychosocial factors, can I suggest that persisting in asserting psychosocial factors are primary when they...
  15. Sean

    News from Germany

    Happening to me too. ME and getting old is not a good mix. :confused: :ill:
  16. Sean

    News from Germany

    Do you mean 'discriminating' (being able to better judge) things?
  17. Sean

    Coronavirus - worldwide spread and control

    Does that article discuss the long-term morbidity costs to individual survivors and broader society? Because they are the real problem with the 'natural' herd immunity approach, besides the length of time it would take to get there (without overwhelming the health system).
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