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  1. Sean

    The use of the labels ME, CFS, ME/CFS

    I thought that until recently. But not so sure now. It's early days but ME does seem to be making a comeback, starting before COVID-19 hit, and accelerating after it. ME is being used ahead of CFS (i.e. ME/CFS), and even instead of it, more than I can ever remember it being. Problem with wins...
  2. Sean

    Psychologically informed physiotherapy as part of a multidisciplinary rehabilitation program for children & adolescents with [FND], 2020, Kasia et al

    From Wikipedia: So, a single outdated outcome measure, of (as far as I can tell) the clinician's subjective assessment of the patient's status (not self-report by the patient), and – in this study – uncontrolled. Yep, the usual crap. :grumpy:
  3. Sean

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Yeah, I don't think we are at the point where reliable distinctions can be drawn between ME, PVFS, CFS, Post-COVID, etc. Or even know if there are any. We just don't know.
  4. Sean

    Interpersonal dynamics & therapeutic relationship in patients with functional somatic syndromes: A metasynthesis of case studies, 2020, Krivzov et al

    Jeebus, do these clowns ever look in a mirror? All of the above could be fully explained by incompetence, dishonesty, and cowardice from the medical profession, and patients struggling to survive it all. Don't you just love how the crowd that go on and on and on about the importance of social...
  5. Sean

    What's in a name? [about functional neurological disorder (FND)], 2020, Tolchin et al

    Of course, there is no possibility that the endless stream of new names and concepts is just a rhetorical smokescreen to avoid having to admit they don't know what they are doing, and the serious harm this inflicts on patients. No sirree, couldn't possibly be that. :grumpy:
  6. Sean

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Outstanding content and clarity, @Michiel Tack. Thank you. :hug:
  7. Sean

    Investigating subjective experiences of cognitive difficulties and objective measures of cognitive functioning in adolescents who had EBV, 2020, Rødø

    The conceptualization of fatigue from an understanding of sustained arousal has provided the framework applied in the overall CEBA project. Now there's a name I wish to never hear again. They have done terrible harm. :grumpy:
  8. Sean

    NICE Statement about graded exercise therapy in the context of COVID-19

    Had the same experience with playing snooker, which has added bending over at the table.
  9. Sean

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Do others think has there been shift in favour of ME being used more than CFS in the post-COVID coverage?
  10. Sean

    NICE Statement about graded exercise therapy in the context of COVID-19

    A more successful approach is to identify a level of exercise that the patient can tolerate, without causing prolonged pain or exhaustion, and use this as a baseline from which to progress.... A baseline level of aerobic activity can then be prescribed which will depend on the baseline...
  11. Sean

    Well-known, famous people with Covid-19 and Long Covid

    No idea about the above rumour. But given Boris' age and weight I wouldn't be surprised if he isn't completely symptom-free yet.
  12. Sean

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Exactly. Where is the hard evidence that the surgery works? Or that the diagnosis is even correct? Excessive secrecy and intolerance of (fair) criticism is one of the major warning signs about any individual or group.
  13. Sean

    The Science of Breathing Well : Physio-pedia

    One of Wessely's early papers didn't find any evidence for a primary role for hyperventilation. https://pubmed.ncbi.nlm.nih.gov/8140219/ "There was no association between level of functional impairment and degree of hyperventilation. There is only a weak association between hyperventilation...
  14. Sean

    The biology of coronavirus COVID-19 - including research and treatments

    Glad I don't have to make the call on that timing. :nailbiting:
  15. Sean

    Discrepancies from registered protocols and spin occured frequently in randomized psychotherapy trials – a meta-epidemiologic study (2020) Stoll et al

    Some just get a kick out of lording it over others. Makes them feel special and important and superior, that they are leaders, and their lives are more meaningful. It is a very powerful motivator.
  16. Sean

    Editorial: Placebo and Nocebo Effects in Psychiatry and Beyond, 2020, Weimer at al

    It is beneficial to maximize the placebo effect when treating patients, Why? It is not. Far as I am concerned there is no robust evidence that the placebo/nocebo effect has any significant sustained effect, let alone a therapeutic one (in the case of placebo). The onus is very firmly on the...
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