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Only now I realized that Flottorp (aka SAF) is also a member of the GRADE Working group. She is also a member of the GRADE Guidance Group (G3): https://www.gradeworkinggroup.org/ Edit: It seems Flottorp (SAF) was added later to the BMJ rapid response's declaration of competing interests, cf:

This isn't the response by Busse and other GRADE people and co-authored by Garner and Signe Agnes Flottorp, though. Garner's link just goes to all responses of the original article, and the latest is displayed first.

Thank you Paul Garner for making people aware of the criticism on the response you co-authored with some members of the GRADE Working Group and Signe Agnes Flottorp. Perhaps Paul Garner forgot about the criticism? And also that the following was added to their response? : "This Rapid Response...

Link doesn't work for me.

https://twitter.com/b_m_hughes/status/1461066024510492681

"Join us in chatting to Caroline Kingdon and Adam Lowe - two of NICE’s ME/CFS guideline committee members at 5pm on Tuesday 30th November 2021. There are only 100 places to attend so follow the link below to RSVP now." http://ow.ly/rOCv50GQ7oI...

News from #MEAction UK Website: https://www.meaction.net/countries/uk/ Twitter: https://twitter.com/MEActNetUK

The ME Association launched a quarterly magazine for healthcare professionals: MEE Medical (ME Essential Medical) https://meassociation.org.uk/wp-content/uploads/MEE-MEDICAL-MAGAZINE-AUTUMN-2021.pdf https://meassociation.org.uk/health-care-professionals/

Comer Ashley L., Carrier Micaël, Tremblay Marie-Ève, Cruz-Martín Alberto (2020), The Inflamed Brain in Schizophrenia: The Convergence of Genetic and Environmental Risk Factors That Lead to Uncontrolled Neuroinflammation, Frontiers in Cellular Neuroscience 14 (2020), DOI...

Not sure whether that has been posted yet elsewhere: BACME member survey presented at the October 2021 Round Table with NICE: Members Survey on the delivery of therapy within specialist ME/CFS services and the journey to publication of the new NICE Guideline on ME/CFS (October 2021) Link to...

Anna Dietzke, Tagesspiegel 10.11.2021 Marina Weisband lives with chronic fatigue syndrome: "The most common cause of death from the disease is suicide" 34-year-old Marina Weisband is a psychologist and participation educator, book author and mother. But above all, she is also a sufferer. She...

I don't have access to the pay-walled paper, so don't know either. I'm not sure if the German noun 'Befinden' that is used in the original (abstract) has an equivalent in the English language. It can mean 'Wohlbefinden' which means well-being in the sense of quality of life. It can also mean...

This Twitter thread on the coping efforts of some people with Long Covid reminded me of how it felt when I had 'mild' ME/CFS: https://twitter.com/PutrinoLab/status/1457410901439565825 (Not sure if posted in an apt thread.) (Edited to not give the impression I thought Long Covid is like mild...

Landmark's article was published on Forkersonen which is "forskning.no's site for debate and popular science". (deepl translate) According to wikipedia forskning.no "has an average of 33,000 visits per day in January 2016 and 1 million visits per month." Also: "forskning.no (science and...

Evaluation of the alternative provision innovation fund - GOV.UK An independent evaluation of the alternative provision innovation fund launched in March 2018 to improve outcomes for children in alternative provision...

One of the reasons I started this thread: Even if I'm confident that some progress on the etiology or pathomechanism of ME or some of the symptoms will be made thanks to the DecodeME study and other research, I'm afraid that the development of a cure could take a long while. Other diseases...

Forum threads and other links: A) UK: Hospital and Outreach Education granted £500k to provide continued education to children absent from school due to long-term illness. Forum thread here. B) Older forum threads with links to media coverage...

There are some trials and projects studying the use of telepresence robots for chronically ill children, including children with ME. I wonder whether these robots could be of use for adults too, for example for participating in projects discussed here (members only) ...

Page, A., Charteris, J. & Berman, J. Telepresence Robot Use for Children with Chronic Illness in Australian Schools: A Scoping Review and Thematic Analysis. Int J of Soc Robotics 13, 1281–1293 (2021). https://doi.org/10.1007/s12369-020-00714-0 Couldn't find this on PubMed but here:

So the professional bodies' representatives preferred to hide their names in a paywalled BMJ article. Anyone else was surprised that the RC of Paediatricians didn't sign the joint statement? Also, I thought it's interesting that, if I looked properly, of all the signatories the Royal College...