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  1. MSEsperanza

    Useful arguments regarding the evidence provided by psychological and biomedical ME research?

    Again, help with this collection by adding arguments, Tweets, transcriptions and sources much appreciated, including criticism/ correction of arguments I posted. (I won't be able to work on this for a couple of days.)
  2. MSEsperanza

    Useful arguments regarding the evidence provided by psychological and biomedical ME research?

    In addition to the post above, copied from the thread on Ton Chivers' article: Just once again think we perhaps should prepare counter-arguments for points that critics will focus on? (Especially for sharing the article on social media.) E.g.: In addition to the essential points I think...
  3. MSEsperanza

    Sense about Science (UK) and subjective outome measures

    Yes, but maybe it's how people mostly will understand it? Anyway, if anyone finds it helpful, I try to collect suggestions how to respond to this kind of arguments here...
  4. MSEsperanza

    Useful arguments regarding the evidence provided by psychological and biomedical ME research?

    On the issue with the combination of subjective outcomes in unblinded trials: "If results are unreliable, they cannot be considered reliable just because it is difficult to get more reliable ones.” In the context of using objective outcomes not instead of but in addition to subjective...
  5. MSEsperanza

    Useful arguments regarding the evidence provided by psychological and biomedical ME research?

    Reply to Michael Sharpes' or Simon Wessely's variations on 'I would suggest reading the paper' (i.e. the PACE trial paper)/ ..."obtaining the full facts of the dispute before rushing to judgement" Simon Wessely in a comment to Steven Lubet, 12.11.2016...
  6. MSEsperanza

    Useful arguments regarding the evidence provided by psychological and biomedical ME research?

    The gist of some of Brian Hughes' and others' quotes on Twitter put in one sentence by @alex3619 : "Clinical psych can use objective outcomes for GET, they just fail when they do, every single time."
  7. MSEsperanza

    COFFI - The international collaborative on fatigue following infection

    Searching the forum for something else, I stumbled across this discussion. I agree with Adrian and others here. In addition, it seems to be much easier to detect holes in psychosocial research, statistics and the like than in biomedical research. Perhaps more expertise on the subject per se...
  8. MSEsperanza

    Useful arguments regarding the evidence provided by psychological and biomedical ME research?

    One of @Adam pwme 's very helpful Twitter threads - comment on Tom Chivers' article quoting Jonathan Edwards, Chris Ponting and others -- forum thread here. [minus the quoted subtitle, see here. ] https://twitter.com/ABrokenBattery/status/1430417304106459139...
  9. MSEsperanza

    What we're not being told about ME - UnHerd (Tom Chivers)

    Once again, a very helpful Twitter thread by @Adam pwme [minus the quoted subtitle, see Adam's post here.] https://twitter.com/ABrokenBattery/status/1430417304106459139 https://twitter.com/ABrokenBattery/status/1430423733810962434
  10. MSEsperanza

    News from Austria and Switzerland

    Computer-based Clustering of Chronic Fatigue Syndrome Patients | MedUni Wien (Vienna) https://www.meduniwien.ac.at/web/forschung/projekte/computer-based-clustering-of-chronic-fatigue-syndrome-patients/computer-based-clustering-of-chronic-fatigue-syndrome-patients/ Google translate: CCCFS -...
  11. MSEsperanza

    News from Austria and Switzerland

    A thread for general news, events, articles etc from Austria and Switzerland.
  12. MSEsperanza

    What we're not being told about ME - UnHerd (Tom Chivers)

    :thumbup: :thumbup: Edited to add: There's a discussion on a members only thread on this and similar arguments. See here.
  13. MSEsperanza

    What we're not being told about ME - UnHerd (Tom Chivers)

    Just once again think we perhaps should prepare counter-arguments for points that critics will focus on? (Especially for sharing the article on social media.) E.g.: In addition to the essential points I think Chivers really understood from Jonathan Edwards' expert testimony, it's also actually...
  14. MSEsperanza

    What we're not being told about ME - UnHerd (Tom Chivers)

    Thank you to John Peters, Jonathan Edwards and Chris Ponting for your contributions to this article. Very much appreciated. And thank you to the author Tom Chivers for listening and asking good questions. I think Chivers got the main issues with the delay of the guidelines and with the...
  15. MSEsperanza

    What we're not being told about ME - UnHerd (Tom Chivers)

    What we're not being told about ME - UnHerd (Tom Chivers) 2021-08-25 There is surely no disease more cruelly misnamed than “chronic fatigue syndrome”. It is mysterious, apparently triggered by viral infection, and can last for months, decades, even a lifetime. Patients can be housebound or...
  16. MSEsperanza

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Probably irrelevant, but I wonder why the BMJ is a stakeholder. Why a journal? Is it also for other guidelines? (Apologies if this is the wrong thread and a probably irrelevant question anyway -- just trying to tidy up my folder of draft forum posts and not up to search the NICE pages myself... )
  17. MSEsperanza

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Update: This was cancelled (It seems the website doesn't allow to copy text -- further info see there.)
  18. MSEsperanza

    Trial By Error: CBT and Irritable Bowel Syndrome

    Mahana Therapeutics gears up to launch IBS treatment app with $61M series B | FierceBiotech, 2021-08-11 [...] As Mahana has begun rolling out its digital treatment program to the masses and accelerated its work to apply cognitive behavioral therapy to other long-term health conditions, it...
  19. MSEsperanza

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    I'm not on Twitter myself but if I were I would vote on Dr. Hammond's poll even if it's ridiculous. Sadly, optics might matter here. https://twitter.com/drphilhammond/status/1429698085425459202
  20. MSEsperanza

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    Found it: "The key challenge for those living & working with #MECFS & #LongCovid is "how can we teach & help people to safely manage their own energy levels, so they can live a life of meaning & purpose without making themselves very ill?"...
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