Search results

I take everything sleep-related at 8pm. That way, I can wake up at 8am ish without feeling too bad. Melatonin is my favourite, but I feel I need an anti-histamine or I have nocturia and IBS-D (AHs seem to dry me out enough to prevent these somewhat). However, some nights I'm a zombie by 9pm and...

I've got cetirizine, which is essentially the same thing. I take it before bed to stop nocturia but it can make me groggy in the morning. I try to mix it up a bit, so I don't take it every night.

Sadly, veganism made me worse. I know some people who do great on it, and others get very worn out and weak from it. I require animal fat at the very least, I've learned. Some people think non-coeliac gluten intolerance might actually be related to fructan...

I can certainly hear my heart making a squelching sound in my ears afterwards, while I'm dizzy. Whether it's adrenaline or just the heart struggling to get blood where it's needed (or both), it definitely feels like a lack of blood in the brain.

Permanent tinnitus. Very quiet, but louder when I get ill. It's like really distant, high-pitched crickets. I just assumed for many years that that was what 'silence' sounded like--a sort of busy, alert vibration, seething beneath the molecules of the universe. Maybe it is?

I had definite periods of illness versus wellness when I was younger.

Idris is way better. And British, not African-American. I still think he should be Bond . ..

Another study finding reduced cerebral blood flow in certain areas after exertion. What I find from personal experience is that there's an acute response to exertion where I get very dizzy and sheet white, but this resolves and then there's a different response a day or three later, which is...

Task related cerebral blood flow changes of patients with chronic fatigue syndrome: an arterial spin labeling study Roland Staud,Jeff Boissoneault,Jason G. Craggs,Song Lai &Michael E. Robinson Received 05 Dec 2017, Accepted 13 Mar 2018, Published online: 20 Mar 2018 ABSTRACT Purpose: One...

It's on Boots too: https://www.m.webmd.boots.com/a-to-z-guides/news/20180322/cbt-for-me-cfs-questioned

This. The term 'evidence based' was a direct quote from their website. I couldn't remember the exact spiel, but I remember that key wording. There was also some guff about 'harassment', and how you couldn't engage in it and had to disavow it. Of course, the website has now changed, making it...

In case it needed to be clarified: I'm definitely not a royalist.

From what I gather, you have to unequivocally accept the 'evidence-based' treatment regime, as they call it, meaning GET and CBT. If you question it, as any right-thinking person would, you can't be permitted to join. I wonder how they'll all cope when NICE gets rid of these recommendations...

Poor Kate. Poisoned by the Weasel.

From that study: As there have been a number of previously reported studies of the red cells in a number of chronic disorders, the observation is not new. Furthermore, the changes in red cell shape populations which occur in ME also occur in other chronic disorders so red cell shape analysis...

Ah, Neil Harrison's name again. Looks like he's pals with Fester Crawly.

I'm not sure this will be a biomarker, though. Simpson 1997 had similar findings but said the RBC changes occurred in other fatiguing illnesses too. So they can help gauge illness duration and fatigue level (the Simpson paper also said RBC shape could be used to decide whether vitamin B12...

I get the reason why (the illness is supposed to change after two or three years), so I can't complain. But it'd be nice to know about the veterans too.

I would do it if I could (the reimbursement would almost cover flights to the USA), but I've probably had this for 18 years.

That was my thinking too.