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Treating TSH only when it exceeds 10 seems ridiculous!

I think there actually comes a point where it becomes a case of 'the lady doth protest too much'. We need to be able to ally with MH advocates, as well as any other advocates, without constantly looking over our shoulder and nervously blathering, 'But it's not psychological you know!' Let the...

From what I can see, there's a lot of conjecture here, more than anything else. It's looking at the role of hormones in autoimmune diseases, and whether testosterone is protective. There are a few links to small/emerging studies. Info here...

I think that's a good idea.

Is it worth including something on risks of harm associated with treatments? If they specifically want to include GET, for instance, then should there also be an explicit recognition that harms also need to be stated to allow for proper informed consent? Otherwise, the scope will go on about...

In 1997, Simpson also wrote about changes to blood shape in fatiguing illnesses, and how it might be a proxy measure of fatigue: http://orthomolecular.org/library/jom/1997/articles/1997-v12n02-p069.shtml Perhaps more interesting is that he also mentions that medical literature as early as 1921...

I gather the Dutch are, like the UK, usually quite obsessed with the BPS model of ME. Although that seems to be (slowly) changing. I'm not sure why it's included in the MEA write-up, however.

God. That man. (And I use the term loosely.) I hope the MH charities protest any move that widens the remit of psychiatrists in opposition to our fundamental human rights. Letting SW change definitions of 'capacity' could be very worrying indeed.

Byron Hyde noted more thyroid issues in his patients. I know MEA says they've not seen evidence of a link before (from their survey, I think?), but I wonder if many patients at the higher end of the 'normal' range (bear in mind some US docs treat when TSH > 3, whereas here we wait until it's...

This is true. Learning self-care was something that took me a long time. It's very easy, when you're trapped at home all day, to get lost in debates online which sap vital energy. I know exactly how you feel. <3

I think we all need to give ourselves a break and stop torturing each other over the correct way to speak/behave/advocate. Biased psychiatrists will think we're nutters whatever we do. Let's save our energy for critiquing and fighting them, instead of each other.

Isn't there also the issue that if you only examine patients with fatigue and an absence of any physical signs, you won't find any physical signs? Obviously post-1988 definitions of CFS primarily look for unexplained fatigue. Some of the older studies focused on muscle fatigability and...

I read everything here with keen interest. What's especially interesting to me is the implication that there's a form with a greater number of neurological symptoms (hence the myalgic encephalomyelitis label), and one with fewer (hence epidemic neuromyasthenia), and that was why they couldn't...

This one should be interesting. Note to self: one of the patients on the last guideline development group said that the scope only searched for 'GET', which meant studies that merely mentioned 'exercise' were excluded (intentionally or not). Maybe we need one of those word clouds to determine...

Looks like this is their previous study on similar receptors/auto-antibodies: https://www.sciencedirect.com/science/article/pii/S0889159115300209?via%3Dihub

It reads like bad science fiction.

Some interesting info on Wikipedia (take it with a pinch of salt, naturally): 'Infusion of Ucn2 into rat hearts resulted in an immediate and significant improvement in left ventricle function, increased coronary flow, significantly altered intracellular calcium handling and increased SR...

I thought I had read it in one of the many letters to NICE from the charities. I think you're right, though, and I see where I'm mistaken. See: https://www.nice.org.uk/process/pmg6/chapter/the-guideline-development-group Patients are given equal status on the guideline development group, and...

Glad to see I'm not alone! The only way I can describe this feeling is that you're energised but calm, you feel connected to everyone around you, there are these delicious shivers down your back and across your scalp (it's like you can feel your hair growing), and you become very tactile and...

I meant to add, too, that NICE is supposed to consider clinical anecdote and patient testimony equally alongside trials. Again, there's bias there, so it's largely a small segment of (BPS) clinicians who are listened to, and patients hardly ever. This, too, frustrates attempts to solely argue...