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I think it depends on which criteria we use, but ME criteria (rather than CFS ones) usually insist on at least some neurological signs (including CCC, ICC, London revised, Nightingale/Hyde, original Ramsay definitions). Given the significant overlap with MS symptoms, I personally would think...

Where to begin? It's no more associated with mental health diagnoses than other chronic illnesses, so right from the get-go it's problematic.

It's interesting. Haven't other studies suggesting auto-antibodies against serotonin too? Antibodies against adrenergic and acetylcholine receptors could suggest one possible reason for cortisol dysfunction and muscle weakness, respectively. Again, I'm reminded of Younger's suggestion that he's...

Perhaps I should have said 'better treatment'. But patients today get only the most basic of blood tests. There are no MRIs to rule out MS, CSF leaks, or other brain problems. There are suggested tests in the ICC Primer, for instance, but to ask for any of those would be met with scepticism...

The problem is, for every 'breakthrough', there's a push back. Maybe not now but some time soon. This isn't the first time biomedical science has seemed to come to the fore in this arena. Until the late 80s, in fact, many people in the UK did get proper treatment and were diagnosed with scans...

It's great. Thanks.

Could we crowdfund a mail drop in Bristol to put flyers through the door about the dangers of GET? It'd be the perfect present on 12 May.

No rejection of 'functional neurological disorder' yet, though. It's like saying you're running a marathon but then not being willing to cross the finish line for some bizarre reason. What's keeping them from making that last little step forward to allay patient fears? Is it because they don't...

Just reading about this makes me so vexed!

Post-exertional neuroimmune exhaustion works for me.

I tried to ask Bristol press office if it was a historic diagnosis or one Esther made up, but they ignored the question and answered something else instead. I'm convinced it's a weaponised diagnosis. In fact, I'm using that term from now on.

The whole concept of pervasive refusal syndrome scares me. It sounds exactly like severe ME, but where the patients refuse treatment. How can we challenge this diagnosis? It's about time a paper was published to dissect and demolish it, as it's a danger when it comes to people getting sectioned...

Merged thread Theresa Villiers MP asked the Secretary of State for Health and Social Care if the NHS could roll out more 'PACE treatment' for people with myalgic encephalomyelitis. Can someone in her constituency point out that it's pacing we want, not PACE? We don't want ill-informed...

This is like mine. I had a virus, then the dizziness and lightheadedness, then more viruses, with exercise becoming slowly harder and harder. I used to exercise every day, but I kept fainting. Then I cut down. I had a pattern of crashes over a decade. A few years ago, I crashed again, and it's...

I'm liking Vink and Ponting more and more.

Exactly.

Those were pretty much my thoughts Ramsay and Hyde mention 'derangement of glycolysis' throughout their work. This would presumably address that, and might help the busted energy systems. I think it'd be a very hit-and-miss treatment, though, since some people have fat issues, as you and...

How much does a study like this support her dietary recommendations? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3321471/ I know people who've benefited from keto for epilepsy and ME, but I'm curious as to whether there's much science behind it. As for the role of mitochondria: Ramsay himself...

Those quotes just sent a chill down my spine. I feel like that game-keeper in Jurassic Park when he realises he's been lured into a trap, and says, 'Clever girl!' This is a very clever man indeed.

I agree. If he's selling out already to build up his profile, it doesn't inspire me with confidence. His co-author published this junk today: https://www.nationalelfservice.net/diagnosis/risk-factors/functional-neurological-disorder-conversion-disorder/ All the best intentions in the world mean...