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Britain has that climate most of the time, but we'd probably call about 60% of it the Really, Really Not Hot time of year. :D It is lovely to be able to sit outside.

I'm not fine about it, but there has to be a risk/benefit analysis as well as a response to other people's preferences. The only way I can think about risk/benefit is through my experience with Covid, which suggests I'm not at greater risk than anyone else my age. The downside of not masking...

I can't answer your question, I know nothing about pharmacology... ...but that's where I'd stop reading. Everyone has their own point of view, of course, but mine is that this kind of experimentation is for clinical trials, not individual doctors trying stuff out on patients. We don't really...

Don't give 'em ideas! :nailbiting:

It's hard to know whether something is happening that shouldn't, or something isn't happening that should. :confused:

My answer nowadays would probably be 'I mask where I might be a risk to vulnerable people, or where others prefer to mask'. It used to be 'I mask only in busy indoor spaces', but it's seemed a bit pointless since I went back to playing music in groups. I probably picked up both Covid infections...

There have been sleep studies, but I can't recall seeing much comparing it directly with other disorders. There appear to be several distinct patterns anyway, and the same people may experience all of them. The most consistent factor seems to be feeling like death dug up on waking, specially...

Maybe not necessarily? A physician who isn't an ME/CFS specialist but is genuinely interested in it could advance their learning a lot by linking up with a charity. Whether anyone has the bandwidth to do something like that voluntarily, given the pressures many NHS doctors are under, is a...

Yes, that's an interesting one. I've so rarely had difficulty spending my waking hours with my feet on the floor that the issue wouldn't even feature on my symptom list, yet I'm severely affected by standing for very short periods. I have to use a powerchair even when I can manage the walk from...

I didn't take it as having been used in a hierarchical sense in the paper. I took it as a useful symptom (from a long list, some of them common in other conditions) to highlight because it's both characteristic and odd. Doctors who read the paper will be familiar with patients who find it...

Different cohorts in this imaginary study, then? It'd be interesting to know if there are symptoms or experiences reported in ME/CFS that a significant proportion of those who recover don't get. The sex ratio idea is an interesting one. Still room for bias in the results, but maybe less...

That might be because it's often carried out by GPs, whose watch and wait approach tends to categorise any result not written in large red letters as probably-within-the-bounds-of-normal?

There's unlikely to be a better time to study that as right now. There seem to be a lot of people whose experience of long Covid looks broadly comparable to post-EBV fatigue. Perhaps it tends to persist for longer, but they do recover. I wonder if they experience that urgent need to lie down...

PS: you can claim by post by sending a request for a form to Freepost DWP PIP 1 (nothing else is needed on the envelope). Allegedly it takes longer to claim that way, but that might not take into account the fact that it takes forever to get through on the phone at the moment. Th other thing...

It's usually around a 50 minute wait, sometimes longer, and calls are not infrequently dropped halfway. It's frustrating, but unfortunately normal. I wouldn't mind so much if they didn't alternate extremely loud music with much quieter announcements, so that you can't just turn the phone volume...

it doesn't sound as if that would start in as little as 20 minutes?

Maybe we need a survey on heat intolerance next... :laugh:

I guess it might depend what you mean by OI? I use it as a shorthand for feeling unwell after a brief period of standing still—in a way that healthy people almost never do—which drives me to sit down. More severely affected people get the same thing when sitting upright, and have to lie down...

So rehab doesn't help. Good to have that cleared up.

Similar for me, I can only be sure PEM isn't a virus when it stops at sore throat, swollen glands, and a slightly runny nose. It never causes sneezing, coughing, sinus pain or earache, and while PEM sore throat's annoying, it isn't as painful as some colds. But while it seems plausible that...