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  1. Jonathan Edwards

    UK: London GP's told to restrict specialist referrals under new NHS 'rationing' plan (The Guardian, 8 Sep 2019)

    I think I read in the Guardian that there is a new plan that when anyone is hungry and thirsty they should get food and drink within 52 weeks minimum. I may have got that wrong. (Note: I have just prorogued the moderation team so they cannot do anything about posts that might seem to be...
  2. Jonathan Edwards

    Denmark: Interview with Per Fink in Dagens Medicin

    `Could a patient organisation in Denmark hire me (free of charge) as a representative?
  3. Jonathan Edwards

    Denmark: Interview with Per Fink in Dagens Medicin

    Could someone suggest he/she engages in dialogue with me? I am not a patient or patient organisation but I am critical!
  4. Jonathan Edwards

    A Messiah in the Norwegian health system? Lightning Process and the Norwegian medical establishment - Blogpost by Nina E. Steinkopf (2019)

    Well if they are paying for it they should be accountable for its use, as I see it! Prospero comes under NIHR. It is clearly not simply a registering tool. The idea is to guarantee quality, as in: 'We hope that this will reduce the potential for bias by reducing the opportunity for data...
  5. Jonathan Edwards

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    A very good friend of mine was once a soloist at the Royal Ballet. She and my wife go to open days at the ballet school to spot new talent. To have any chance of success ballet dancers have to start as children, often quite young. As far as I am aware all the flexibility they show is a...
  6. Jonathan Edwards

    A Messiah in the Norwegian health system? Lightning Process and the Norwegian medical establishment - Blogpost by Nina E. Steinkopf (2019)

    I see this is under the UK National Institute for Health Research NIHR. How the heck does NIHR get to register a commercial product being reviewed by the people selling it?
  7. Jonathan Edwards

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    I don't think that is likely. RoB2 has been in progress for about 3 years. My understanding is that there are some discussions occurring mid September. Whether there are other reasons for delay I don't know.
  8. Jonathan Edwards

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I am one of maybe no more than a score of musculoskeletal physicians worldwide who have made connective tissue structure, pathology and biomechanics a special interest. I used to write the chapters in textbooks on connective tissue physiology. I still sometimes get things wrong but the situation...
  9. Jonathan Edwards

    Trial By Error: An Open Letter to Dr Godlee about BMJ’s Ethically Bankrupt Actions

    Some points of interest. 1. Clinical trials can be divided into explanatory and operational. An explanatory trial addresses mechanisms of disease or treatment action. An operational trial addresses whether a treatment works. Both sorts try to show cause and effect. Explanatory trials try to...
  10. Jonathan Edwards

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    We probably should not post the whole thing for copyright reasons. For me it would be against College rules. But somewhere a few days back pretty much all the relevant paragraphs were pasted in to a thread here. Sorry not sure exactly where. It really does not say much other than that.
  11. Jonathan Edwards

    Trial By Error: An Open Letter to Dr Godlee about BMJ’s Ethically Bankrupt Actions

    Interesting point, of relevance to NICE members @adambeyoncelowe and @Keela Too. It reminds me that Simon Wessely said to me that his only concern about PACE was that it would be followed by rolling out of 'CBT' done by subcontracted services using people who were inadequately trained. Of...
  12. Jonathan Edwards

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    https://www.ncbi.nlm.nih.gov/pubmed/28961036 It has been quoted earlier on this thread or another, not sure which. I have access to full text but not sure if someone has found open access.
  13. Jonathan Edwards

    Google bans advertising for speculative and experimental medical treatments

    I can think of videos produced by subcontracted Health Authorities showcasing 'Body Psychotherapy' and graded exercise?
  14. Jonathan Edwards

    News from Scandinavia

    Moderator note: This post has been copied to this thread, where there may be further discussion of it. https://www.s4me.info/threads/trial-by-error-an-open-letter-to-dr-godlee-about-bmj%E2%80%99s-ethically-bankrupt-actions.10988/page-3#post-200086 I have today sent a letter to Dr Godlee of...
  15. Jonathan Edwards

    Trial By Error: An Open Letter to Dr Godlee about BMJ’s Ethically Bankrupt Actions

    Moderator note: This post is copied from this thread. https://www.s4me.info/threads/news-from-scandinavia.647/page-37#post-200059 I have today sent a letter to Dr Godlee of BMJ about the Lightning Process. The content is given below. Dear Fiona, I note the recent publication in BMJ of an...
  16. Jonathan Edwards

    Sickness & behavior in ME/CFS (Chronic Fatigue Syndrome) - Jonsjö, Martin 2019 (Thesis)

    Although it has given rise to much debate and critique from patient organizations, the to-date largest trial comparing CBT to graded exercise, adaptive pacing and standard medical treatment showed moderate but evident improvements in functioning (111) The more I looked at my slide for NICE the...
  17. Jonathan Edwards

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    You have expressed some interesting points @butter. Just two points in reply. We have discussed here in the past the fact that although people have improved in terms of symptoms dramatically after cervical fusion that does not necessarily tell us there was anything wrong with the neck prior...
  18. Jonathan Edwards

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I think that is what happens when you get a collection of 'experts' round a table and chuck in everything they suggest, including some stuff that probably should not be there.
  19. Jonathan Edwards

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I meant OK in the sense of being able to manage - better than, as you say, you can when 'slammed into the ground the next day'. This is what people repeatedly tell me occurs.
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