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Mast cell activation syndrome: Importance of consensus criteria and call for research, Valent, Peter et al. 2018, Journal of Allergy and Clinical Immunology, Volume 142, Issue 3, 1008 - 101, https://www.jacionline.org/article/S0091-6749(18)30854-6/fulltext (letter to the editor) I found this...

17 June 2019 Amended Addition of new published note: 'Cochrane’s Editor in Chief has received the revised version of the review from the author team with changes made in response to the complaint by Robert Courtney. The process has taken longer than hoped; the amended review is being finalised...

Martin's Jester Challenge against Myalgic Encephalomyelitis Single-handed sailing from Plymouth to Baltimore for OMF because Millions of lives are ruined by this condition. https://www.justgiving.com/fundraising/martinsjesterchallengeforme

Presumably yes. But first and foremost I think it means that ethics committees have never erred, nor will they err to all eternity.

http://www.virology.ws/2019/06/05/trial-by-error-my-follow-up-follow-up-with-dr-segal-about-lp-study-citation/

:thumbsup::emoji_four_leaf_clover:

https://www.s4me.info/threads/stanford-community-symposium-2018-fluge.6037/#post-113118

Anyone feeling up to edit some of the pages recently cited with regards to the 'CCI-ME' story? https://www.me-pedia.org/wiki/Craniocervical_instability https://www.me-pedia.org/wiki/Intracranial_hypertension Perhaps at least add links to the discussions on S4ME? :ill::( Moderator note: This...

Moderator note: This post was copied, and subsequent posts discussing it, have been moved from this thread: Biomedical articles on MEpedia - purposes and pitfalls Discussion of MEPedia policy on its science articles and what should be included continues on that thread. Anyone feeling up to...

-> https://www.s4me.info/threads/understanding-the-lightning-process-approach-to-cfs-me-a-review-of-the-disease-process-and-the-approach.4888/ ;)

Thank you, @JenB I didn't say you were. Yes and I think more caveats are needed than those you have already been making. Please try to understand the financial, emotional and also healthwise burden that pursuing a CCI diagnosis plus the special requirements you and Jeff think are needed so...

The problem to me seems that the way you report your story [edit:] online, also on Medium and elewhere, encourages people with ME to pursue CCI diagnosis. Given the considerations made in my previous post and by others, I find this distressing. Edited to add: I don't understand why this...

I am also happy to hear you have improved so much, @JenB and I wish the improvement continues. Thank you for letting us know what was going on and your thoughts about it. I appreciate that you made it clear that right now nobody knows the cause of your improvement for sure, and that the idea...

bump edited to add: https://www.s4me.info/threads/understanding-the-lightning-process-approach-to-cfs-me-a-review-of-the-disease-process-and-the-approach.4888/page-3#post-87936 edited to add 2: -- not LP, but NLP and coaching:

I admit I don't know which criteria are now most consensually used within serious ME research, and don't have the capacity to discuss the different criteria per se. I am rather thinking about a more pragmatical question: Given that ME advocacy often refers to the ICC or CCC, are there any...

Thank you, @dave30th. (Re-using a comment I made on an other thread.) I don't know about Esther Crawley's relation to T. Segal (who not only approvingly refered to the SMILE trial in the recent paper David is refering to but is also the almost omnipresent author of the Royal College of...

An influential teacher at least: http://www.bristol.ac.uk/social-community-medicine/people/esther-m-crawley/teaching.html I don't know about her relation to T. Segal though (the almost omnipresent author of the conference's contributions on ME/CFS) other than Segal perhaps received Crawleys...

Thank you. I was aware of that. :) I just wanted to link to the context within which this and the other contributions were presented on the conference. P.S. I am also aware that even though EC seems to have not presented anything herself, her and other cognitive behavioral concept proponents'...

Seems these contributions were mostly presented as posters. Perhaps not so easy to find in the program. Also, not all titles include ME/CFS.