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These groups' (Young Persons Health Special Interests Group and Paediatric Educators’ Special Interests Group) conference program : https://www.rcpch.ac.uk/news-events/events/young-persons-health-special-interests-group-paediatric-educators-special I was surprised by the absence of Bristol /...

A Freudian slip? That would be interesting to know: What exactly were the kids asked about their school attendance? (Also considering that it was a null result at 6 months) (Apologies, haven't re-read the paper, do they display the questions there?)

Does anybody understand what Sharpe wanted to say here (as one of the experts asked by the SMC)? The first sentence seems just strangely worded, but the follwing sentences? Perhaps I don't understand the meaning of the words "however" and "likely" in this context? (The preceding sentence is...

Thank you @Kalliope and @Esther12 Is @dave30th aware of this?

Just vaguely recalled there were one ore more Norwegian ME researchers refering approvingly to the Lightning Process, and found this -- are there more examples?

https://adc.bmj.com/content/103/2/155.responses

https://statmodeling.stat.columbia.edu/2016/01/05/pace-study-and-the-lancet-journal-reputation-is-a-two-way-street/ There are also some forum threads on Gelman or mentioning him.

https://www.s4me.info/threads/my-robot-makes-me-feel-like-i-havent-been-forgotten.5552/ (which isn't suitable for the very severely affected, though)

Don't know where to put this, so I leave it here: I want to thank all who were and are busy with all the highly relevant things currently happening--the ME awareness week, the media coverage and recovering from attending May 12th events, plus dealing with the newly released PACE trial data...

Deleted one of my previous muddled posts. Apologies. What I wanted to say in this post was that, from my experience as well as from what people in other threads wrote, many of us struggle with (temporary) severe cognitive impairments that aren't assessed properly. In my case, I can increase...

My last point on this for now: To not harm severely affected with experiments, do we have any evidence with regard to sleep regulation and other symptoms management from homecare/ palliative care in other illnesses such as MS that could be applied to ME?

In general, I think to not misunderstand Jonathan‘s idea it‘s important to be aware that he is interested to find out what helps and that he doesn‘t make assumptions. Some of us who are living decades with certain illness patterns might feel offended when somebody wants to investigate such...

So do I but as I am planning to have a longer forum break, I'll leave some preliminary thoughts here. Apologies if some thoughts might be off topic. I never experienced severe phases or prolonged PEM lasting longer than several weeks. I just thought that perhaps there are some general...

I'm too slow for this thread, so repost and amend what I added when you already had answerd my post: I'm not bedbound, and despite having an ME diagnosis am increasingly unsure if I have ME at all, but my experience is that going to bed and raise within a fixed time window [edit:] seems to help...

But over how many days would you think one would have to follow a sleep routine to have sufficient evidence whether it helps or does harm? edited to add: for me I think it helps, but I'm not bedbound. And sometimes I have to lie down again shortly after I got out of bed. I also have several...

"The amendment will not include a full update, but a decision about this will made subsequently.'" https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD003200.pub7/information#whatsNew

The Free State of Bavaria's public service broadcasting, BR : Möglicher Bluttest für Chronisches Fatigue Syndrom, BR24, 06.05.2019, by Yvonne Maier, https://www.br.de/nachrichten/wissen/moeglicher-bluttest-fuer-chronisches-fatigue-syndrom-me-cfs,RPgmUEL Potential blood test for Chronic Fatigue...

In Germany, the media coverage of ME has hugely improved since the "Deutsche Gesellschaft für ME/CFS" entered the stage. Even though it seems to me the DG generally tend to over-interpret the findings of biomedical research--now the nanoneedle results--, and journalists appear to be happy with...

Hm, I find the abstract very confusing. I understood the paper's authors (or other researchers?) first tested their hypothesis on small animals? These studies have revolutionized the knowledge about aluminium toxicology (or toxicity?) in general? Now they have tested their hypothesis on sheep...

Wondering if it's possible to replicate this study by including this seemingly very simple test in as many trials on ME as possible? E.g. to compare the results of the handgrip test at both days of the 2-day CPET? (Could it measure PEM?)