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:emoji_rage:Funded by - National Institute Of Neurological Disorders And Stroke of the National Institutes of Health under Award Number R01NS111105. So why not open access ?!?:emoji_rage:

New relevant work from Conroy, Jason et al, discussed here https://www.s4me.info/threads/evaluating-case-diagnostic-criteria-for-me-cfs-toward-an-empirical-case-definition-2022-conroy-jason-et-al.24829/ Doesn't include NICE 2021.

It would certainly be a sea change in perception of patients - positive messaging from biomed sources etc. How far the tide will have shifted is a function of how big the problem is and we still have no idea what it is going to take to even get a half good picture of what ME/CFS is. We have to...

Depressive realism - https://en.wikipedia.org/wiki/Depressive_realism "the hypothesis developed by Lauren Alloy and Lyn Yvonne Abramson[1] that depressed individuals make more realistic inferences than non-depressed individuals. Although depressed individuals are thought to have a negative...

Always useful to look at the quoted source, in this case: Prevalence of post-COVID-19 symptoms in hospitalized and non-hospitalized COVID-19 survivors: A systematic review and meta-analysis to check whether hyperbole is being substituted for facts. What the source actually says: "In fact...

Re: "2.1. Participants The participants were from a high school in Shaanxi Province, China, a full-time closed management school where students with CFS are concentrated." Having consulted a knowledgeable person this is probably not as weird as it sounds in translation and what is meant is a...

Whatever you think - I can only offer suggestions from the sidelines as per https://www.s4me.info/threads/funding-of-me-cfs-research-in-the-uk.2533/#post-406747 Darren Jones may feel conflicted over having a go at his local University so the Crawley aspect would have to be toned down - leaving...

Poorly informed or biased researchers will, excepting serendipity, produce poor research. There isn't, and never could be a criteria set - whether diagnostic or research focused, that can stop ill informed, prejudiced or mendacious researchers from producing inadequate, misleading or dishonest...

It may not be a killer, but I would guess the MPs for the four Bristol constituencies - E, W, S and NW together with the immediate surrounding constituencies of North Somerset, NE Somerset, Kingswood, Thornbury/Yate and Filton/Bradley Stoke might be wary of upsetting the applecart, although...

In the context of research there would have to be a definition of what is meant by "trigger". The common meaning is something which has causal impact, rather than simply meaning x preceding y. Defining trigger in ME/CFS is challenging because we don't know what any of the underlying mechanisms...

I guess a motivated MP can find a way to pursue any issue but it's difficult to see where a non England MP could get purchase on a subject that's entirely about English allocated spending because there's not much room to claim a wider UK interest. The previous (now sacked) Health Secretary...

"Severe health relapses in ME/CFS patients result in functionally important changes in their DNA methylomes that, while differing among patients, lead to similar compromised physiology" I don't understand the certainty about implied causal route. Surely all that can be said is that: 'severe...

Diagnosis is stated to be Fukada but the intervention used makes this less than credible: "The total duration of exercise was no less than 45 min, with each session consisting of a 5-min warm-up, 20–30 min of aerobic running, and a 10-min relaxation period. Heart rate was monitored by wearing...

It wasn't just the Conservative perspective. What I would call the British interpretation of BPS, (to distinguish it from Engel's work) was taken forward by Mansel Aylward under a Labour Government. The explanation of why that happened is complex, but to massively oversimplify it - even in the...

I don't disagree but my post was more about contrasting the two 'circularities' - I would add 'it's always easier to see other people's failings than our own'. With the prospect of real opportunities for PwME to influence the direction of both research and treatment, being able to identify our...

This does have the look of an article that is placing a 'claim' to a share of ME/CFS research, this bit seems to cover that although they are making a point about viral/versus non viral (translation from German to English via Google: "The current research agendas on ME/CFS such as B. the...

It might well be that the best strategy is to take a year zero attitude and simply work with what is now available and not reference the past. I'm not sure though that will get to the heart of the pro psych bias present within the NIHR structure. The PSP doesn't mean that the NIHR will be...

For all the reasons Jonathan Edwards has enumerated, as far as research is concerned the GL doesn't materially change anything - the exception being any research on CBT and GET for ME/CFS where the GL undermines the validity of further research in that direction. The circularity in the psych...

Historically, and for generally sound reasons UK research funding has been arms length from Government and subject to only limited prescription by the funding bodies, so setting out some kind of rule on cohort selection would be anathema to the system. A funding body could set a specific...

@FMMM1 - getting late in the day ? :) Department of Health & Social Care rather than DWP. Spot on though re: lack of joined up thinking - or is it just lack of thinking ?