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For me it's always been about bringing on 'the worst of the worst'.

It's also confusing because it suggests exacerbation of symptoms that were present pre exertion but doesn't allow that the exertion may produce symptoms that are specific to the post exertion state, i.e symptoms weren't there before the exertion and only occurred following the exertion. PEM at...

So - as per the links, how does that happen in the UK contrary to Gillick competence ? I'm not saying there aren't problems I'm just trying to understand how it can be so absolute given that there are independent points of support e.g https://www.pohwer.net/childrens-and-young-peoples-advocacy

Not sure I understand the question but a couple of links from another thread may help: : https://www.nhs.uk/conditions/consent-to-treatment/children/ and https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4962726/

Fungal infection is a good bet. As a persistent symptom for anyone with ME/CFS it is certainly worth checking with the GP to rule out potential co-morbidities such as diabetes or hypothyroid which can be implicated in odd skin afflictions.

I guess they've agreed some set of protocols about how each uses data, very likely based on what has already been happening without a formal agreement, and this will mean that whenever Cochrane produces a review this can translate into a NICE update without NICE having to go through the full...

New jargon same as the old jargon. Persistent Physical Symptoms is the the new name for MUS...

Yes that was my thought. There's also this: https://wmmeg.weebly.com/uploads/4/8/6/8/4868611/0710_-_collaborative_conference_programme_oct_2007.pdf

Whether it can be reformed or not I don't know. What I see is a group NHS professionals organising in a way that's appropriate to the development of a service that was being sought by their employer., career development is key part of that - why should to workers not organise to have (from their...

I think this was in the first flush of enthusiasm - right before "austerity" came in with the new Government in 2010 and before everything in the NHS, that wasn't so before, was fractured into separate competing cantons by the 2012 Health & Social Care Act. In 2009 I think it was envisaged that...

https://web.archive.org/web/20101211083628/http://www.bacme.info/aboutbacme/

Kent and Sussex have a total population circa 4 million, which if we take 250,000 as the UK patient number, would give a pro rata of around 15,000 patients in K&S. Compared to the MEA and AfME which have perhaps 4,000 members/subscribers/supporters each, 800 members would be favourable, at...

Charity Register shows limited financial activity in recent years: https://www.s4me.info/threads/sussex-kent-me-cfs-society.1906/page-4#post-365194 down to £6.4k in 2019, up to £15k in 2020. It only reports as small Charity so only gives a limited report of its activities. Current Trustee Chair...

"In contrast, the patients with non-infection-triggered ME/CFS showed fewer and other correlations" How is it possible to distinguish between infection and non infection triggered ? Self report cannot identify underlying pathophysiology. This unaddressed assumption could have a major impact on...

Questioning professional affiliation is a bit iffy. Every senior medical professional in the UK belongs to one of the Royal Colleges or some comparable entity, so calling out an 'august' body because it might back the view of one of its members doesn't have a lot of strength and certainly isn't...

"Events, my dear boy, events"* Given the release date is mid August when half the UK media is on holiday and we are in what is traditionally the 'silly season' where media content is even more than usually filled with trivia, we could have expected the Guidelines to get a good deal of media...

Click-bait masquerading as journalism.

Specifically mentions CFS: Edited to add spacing

Sci-hub link for those without other access - https://sci-hub.se/https://doi.org/10.1016/j.brat.2017.11.004 The mythical 'deconditioning gets a mention:

Although modes of employment for males and females have become increasingly similar type of job still provides a major 'effect modifer' (aka confound !). Employment related health impairment is more common in both males and females in less wealthy socioeconomic groups than wealthier groups but...