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Is it not the bureaucrat language of passively aggressive "begging the question" ? i.e "I know you know what the law is, so why are you ****ing well not following it ?"

Just putting this here as a counterpoint between "service" and "real world" https://northeastnorthcumbria.nhs.uk/our-work/wider-impact/risks-to-clinically-vulnerable-people/ Letter sent 2 September 2022 to the chief executive of the Office of Gas and Electricity Markets (OFGEM) from the North...

How to "not represent ME/CFS"

This may have relevance for work on Functional Neurological Disorders that relies on interoception measures.

Experienced time expands and contracts within each heartbeat, 2022, Arslanova, I., & Tsakiris PsyArXiv Preprints https://psyarxiv.com/vygqf/ Abstract The experience of time is highly subjective. When we stare at the hands of a clock, a minute can feel much longer than when we are swept in a...

The main challenge to 'business as usual' is budgets, but I don't think anyone yet has a grasp of how the new Commissioning bodies are dealing with the challenges that face them. Given the current cost of fuel crisis in the UK, from which as yet the NHS is unprotected, and the somewhat confused...

To do that will need effective monitoring of the re-organsation process - personally I've got no handle on what the new set up https://www.england.nhs.uk/integratedcare/what-is-integrated-care/ means

Functional neuroimaging in psychiatry and the case for failing better, Matthew M. Nour, Yunzhe Liu, Raymond J. Dolan Summary Psychiatric disorders encompass complex aberrations of cognition and affect and are among the most debilitating and poorly understood of any medical condition...

Simple answer is a guideline is only a guideline and doesn't trump medical expertise. There are no 'banned' techniques as such only a limitation on how certain interventions are prescribed. Deconstructing the whole funding/contract/commissioning process for a given service requires something...

Difficult to make something contractual on "unpaid" peer reviewers. Of course journals could start paying for peer reviews but then that might upset the business structure of academic journal publishing which is based on extracting as much value for the publishers as Government funding and the...

‘It’s time to devise a more efficient solution’: Science editor in chief wants to change the retraction process "On the heels of a high-profile retraction that followed deep investigations by the Science news team, Holden Thorp, the editor in chief of the journal, says it’s time to improve the...

It's difficult to get people to think in other than linear terms, even more so for those who measure things - therapists, researchers etc for who there is a tyranny of 2d charts with everything moving, if only on the time vector - in one direction. I'd hesitate to invoke 'chaos' but...

Cumulative Fatigue Symptom Index = Kosugo, R.; Fujii, H. An index for rating Cumulative Fatigue Symptoms (CFSI) in different occupations. J. Sci. Labour 1987, 63, 229–246. (In Japanese) [Google Scholar] The Google Scholar link is to a citation only, and the article doesn't appear be available...

Sci-Hub Screening for prolonged fatigue syndromes: validation of the SOFA scale and Prevalence of chronic fatigue syndrome in an Australian population years 2000 and 1990 respectively, nice to see the psychs using up to date research.

OSTP Issues Guidance to Make Federally Funded Research Freely Available Without Delay https://www.whitehouse.gov/ostp/news-updates/2022/08/25/ostp-issues-guidance-to-make-federally-funded-research-freely-available-without-delay/ Today, the White House Office of Science and Technology Policy...

Study pretty much relies on this for an ME/CFS connection: https://www.s4me.info/threads/myalgic-encephalomyelitis-chronic-fatigue-syndrome-evidence-for-an-autoimmune-disease.3560/ Basically this article is "lets throw in a few separate medical conditions that look a bit similar and see what...

The NHS is being squeezed in a vice "During June of this year, 102,000 people waited 12 or more hours in A&E, almost four times the pre-pandemic average for the same month. A further 441,000 waited between four and 12 hours, double the typical number. By my calculations, June’s waiting times...

Differentials on Neurological and Endocrine comorbidities account for virtually the entire cohort gender differential. Neuro comorbid 65f - 18m = 47fdif, Endocrine comorbid 32f - 3m = 29fdif Total Nc + Ec dif 47f + 29f = 76fdif Total study cohort 213 - 76fdif =...

Ugh - the Guardian uses the phrase "busy mum" - pretty much says it all about this nonsense article. For anyone wanting a longish read on viral 'seasonality' Seasonality of viral infections: mechanisms and unknowns "Abstract Seasonality is a long-recognized attribute of many viral infections...

Yup. I've only ever been in an ambulance/A&E once in my life - over 20 years ago, even then 10+ years of having ME - I certainly wasn't concerned about whether any staff were ME aware or whatever. I was however (reasonably so) concerned that I may have lost permanent function in a hand. It was...