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    United Kingdom 2022: Action for ME (AfME) Consultation on media guidelines

    Yes I assume that is how they use the current 'guidance' - additionally I'd make it available online as a media contact page.
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    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    Phil Hammond retired from the NHS at the beginning of 2022: In Conversation Live with Dr Phil Hammond https://www.rsm.ac.uk/events/philanthropy/2021-22/phq13/ "Dr Hammond qualified as a Doctor in 1987 and worked in the NHS for 37 years. As a doctor, he worked part time in general practice for...
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    United Kingdom 2022: Action for ME (AfME) Consultation on media guidelines

    There's an ambiguity in what AfME is asking for - it's not clear whether they mean their "handbook of best practices" will replace or, will be used alongside the existing guideline. Anyone making a response might want to address that along with the question of how the "handbook" can be best used...
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    Journalist Primer: How to Report on ME/CFS (from MEAction)

    Media markets and media cultures vary hugely from country to country. In the US, local TV and Radio has a far greater presence than in the UK, and while there has never been a large 'national' Newspaper market such as that in the UK, there has been a very strong body of quality journalism...
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    Limitation of Consent

    I don't understand - who is going to "suck it up" ? Patients wanting paramedic supported transport to an emergency department aren't in a position to demand which clinicians will treat them in A&E - either the patient is in need of emergency intervention in hospital or they are not. Having a...
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    Scientists face hard choices as UK prepares to abandon EU projects for years to come

    €42mn on a contribution of €6.7bn so yes only around 0.62% of the total UK Horizon spend over seven years: https://www.nature.com/articles/d41586-020-03598-2 That of course is across all sciences, not just Health. An aspect of Horizon that's often understated is the involvement of 124 non EU...
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    Limitation of Consent

    Record-breaking ambulance waiting times could get ‘significantly worse’ in winter, chiefs warn "The June figures also showed that almost 6,485 people waited in ambulances outside hospitals in England for more than four hours, while 3,925 waited over five hours. A further 494 waited longer than...
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    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    The key paragraph from Clark: "CFS is a complex condition affecting physiological systems. It is important that novel analytical techniques are used to understand the abnormalities that lead to CFS. The underlying network structure of the autonomic system is significantly different to that of...
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    Long Covid in the media and social media 2022

    Private Eye 28th July
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    Long Covid in the media and social media 2022

    Private Eye 12th August 2022
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    United Kingdom 2022: Action for ME (AfME) Consultation on media guidelines

    Probably not a popular opinion but I think the current doc is pretty good in terms of what is - which is a first text intro for journos who are not going to invest more than 120 seconds on a précis. Clearly this isn't for health journos working up a long article about ME/CFS but then they...
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    GP chief warns WFH (working from home) could have a profound impact on Britain's mental health: Clare Gerada

    I think it's worth deconstructing the context rather than the words. Gerada of course has to be responsible for her words and her part in this particular performance but the quote from Gerada is actually quite anodyne in contrast to what the Headline claims. This kind of manipulation (headline...
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    Esther Crawley

    I think it might be fair comment as immediately it would include colleagues listed here: https://www.bristol.ac.uk/academic-child-health/staff-directory/ not to mention the 1000+ other academics associated with Bristol Uni's Medical School. Thankfully academia exists beyond the BPS Universe even...
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    Scientists face hard choices as UK prepares to abandon EU projects for years to come

    The potential is for all of UK science to be impacted in the long term - however it has no effect on current funding, so DecodeME for example is not affected. The UK Government is not itself talking about reducing research funding, but as @cjlush points out above, the UK has been a net gainer on...
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    Placebo Wikipedia Article and Reference Fraud

    Looking through the history I think that's just an editing error. I passed on the info to someone who might know someone who'll be interested in correcting the article. With Wiki I reckon genuine error outruns intentional malice at least a 100:1
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    International: World Health Organization News (news relevant to ME/CFS, Long Covid and related conditions)

    More recent paper: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8906524/ https://www.s4me.info/threads/long-term-covid-19-sequelae-in-adolescents-the-overlap-with-orthostatic-intolerance-and-me-cfs-2022-morrow-rowe-et-al.25013/ Long section on Management includes: PEM and Managing Activity...
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    Scientists face hard choices as UK prepares to abandon EU projects for years to come

    POLITICO By Cristina Gallardo August 17, 2022 11:36 pm "LONDON — British-based scientists face agonizing decisions over the future of their world-leading research projects as the U.K. moves closer to quitting the EU’s massive R&D funding scheme this fall. The British government’s decision to...
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    Esther Crawley

    I wouldn't read too much into Crawley's connection to this post, a major part of the job is teaching and Bristol's Intercalated BSc in Child Health Research is specified for which Crawley is the course organiser. As a researcher the post holder will have their own priorities and while they may...
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    In Schizophrenia, Chronic Fatigue Syndrome- and Fibromyalgia-Like Symptoms are Driven by Breakdown of the Paracellular Pathway..., 2022, Maes et al

    Physio-somatic symptoms in schizophrenia: association with depression, anxiety, neurocognitive deficits and the tryptophan catabolite pathway Buranee Kanchanatawan & Sunee Sirivichayakul & Supaksorn Thika & Kiat Ruxrungtham & André F. Carvalho & Michel Geffard & George Anderson & Cristiano...
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    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Putting this here because it's relevant to how familiar/unfamiliar NHS clinicians are with the NICE Guideline: "Growth in NHS recruits from abroad prompts concern about over-reliance The NHS in England is increasingly reliant on doctors and nurses recruited from outside the UK and EU, analysis...
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