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For anyone not familiar with what is going on in the UK, the change in Secretary of Health & Social Care (SoHSC) is part of a wider crisis in the UK Government which is leading to major instability both within the administration itself and in the ruling Conservative Party as a whole. How this...

It is a long established Government target to increase the amount of 'contracted out' NHS services and the whole thing has been bureaucratised to make it a standard part of how the NHS operates - Private companies’ involvement in the NHS . With over £2bn (2015 !) in health contracts going to...

Statpearls is a private US based company. As far as I can see the business model is selling the Statspearls materials via its corporate access https://www.statpearls.com/home/groupsales/ which is then sold on as courses via the Statspearls website. The institutional base seems to be mostly if...

OK so this poster presentation is based (sort of) on the paper discussed here: https://www.s4me.info/threads/is-it-time-to-act-qualitative-study-of-acceptability-feasibility-of-acceptance-and-commitment-therapy-for-adolescents-with-cfs-2021-crawley-et-al.20297/ which was published just before...

It really is brazen - I assumed there must be at least some NICE recommendation of "fatigue" that specified Activity Management, Graded Exercise Therapy or Cognitive Behavioural Therapy - yet as you say there is absolutely nothing, except in the Clinical Knowledge Summaries Tiredness/fatigue...

My comments in bold Aims Paediatric chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) effects 0.5–3.28% of children. (poster presentation so no need to reference a claim that up 400k UK under 18s could have ME/CFS - and really can't they proof read out effects/affects ?) NICE...

Certainly there should be no unwarranted or at least no unacknowledged assumptions - we know so little about ME/CFS that would be foolish. But if all experiences are to be acknowledged we have to use precise language to avoid conflating one idiom, label or experience with another. Currently we...

That is to confuse two separate things. I would guess that most PwME experience some kind of exhaustion, need to rest etc, soon after exertion and that effect may take some time to resolve, but that is not what has been consistently described as Post Exertional Malaise. PEM by definition is a...

Single reference to deconditioning is the 2005 Clark & White paper "The role of deconditioning and therapeutic exercise in chronic fatigue syndrome (CFS)" Sci Hub full paper: https://sci-hub.se/10.1080/09638230500136308

They repeat the canard of representing "Three clinicians resigned from the NICE guideline committee before publication" as though the three were disassociated from the final publication, which they certainly were not. The duplicity of this is clearly conscious because they avoid making their...

Introduces a new notion, the "reproducibility movement", seeks to use gender as a source of victimhood for researchers - refs the case of Amy Cuddy: https://www.thecut.com/2017/04/amy-cuddy-death-threats.html and although the authors acknowledge their hypothesis falls, manage to construct an...

Frontiers Psychology, 13 June 2022 The Reproducibility Movement in Psychology: Does Researcher Gender Affect How People Perceive Scientists With a Failed Replication ? Leslie Ashburn-Nardo, Corinne A. Moss-Racusin, Jessi L. Smith, Christina M. Sanzari, Theresa K. Vescio and Peter Glick...

The reason I said above that I though it was a clever piece of work is precisely because of the language. I may be over crediting the creators but it seems to me to be set in exactly the legal and managerial language of the NHS and therefore challenges the rule breaking as identified in...

I think this may deserve a thread of its own. I've only listened to a small part and while the "management speak" is sometimes off putting, this looks like a very clever piece of work

It's difficult to exclude correlation. If PEM is mediated by an elapse of time - it is classically described as occurring many hours after an assumed precipitating activity/event - then in any individual where onset of PEM is perceptible after an elapse of time which includes the usual sleep...

People who can take two one hour long Tai Chi lessons a week and practice at home for 30 minutes each day have an improved health related quality of life by doing Tai Chi compared to not doing Tai Chi. MRI scans showed some areas of the brain glowed a bit more after a month of Tai Chi, in people...

AD variation runs in families so looking for an association for ME/CFS in first degree relatives risks picking up familial groupings with high AD prevalence but which are only randomly associated with ME/CFS. How do autoimmune diseases cluster in families? A systematic review and meta-analysis...

A limitation of using first degree relatives is that without specific analysis it is difficult to separate social, behavioural and environmental features from purely genetic factors. Each family unit tending to have the same access to healthcare, same dietary habit, same addictive habits, same...

Broadly there are four domains where 'deconditioning' is a valid term - old age, prolonged immobilisation, athletic injury and space flight. In the case of athletic injury unless the athlete suffers prolonged immobilisation, deconditioning is a purely relative process and there is no...

No shortage of relevant papers from a Google Scholar search on "deconditioning in older people", the term has been in use for at least 20 years. Deconditioning in old age seems fairly well defined, and has a clear association with 'frailty'.