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"Central fatigue is characterized by a lack of self-motivation and can manifest both in physical and mental activities. Peripheral fatigue is classically manifested by neuromuscular dysfunction and muscle weakness. Therefore, the distinction is often seen as a difference between intention...

My husband's family are thin. His female cousins are twig like naturally. I used to think I was terribly greedy because if we missed a meal I would be ravenous but he would not be bothered. Then I realised that he just was not hungry. There was no will power involved. He eats what he wants...

They didn't mention patient confidentiality at first. It was something they came up with after their other reasons failed. I seem to remember one of their arguments went that if people got the data they would misrepresent it and bring the university into disrepute so overseas students would not...

In the context of ME they specifically meant it as outbreaks of infectious disease. They took it from the life cycle of polio where the virus caused infection in many people but only some developed what was thought of as "polio" with paralysis and death. There could be many reasons there do not...

It all comes down to the fact that they say we have a genuine disease but what they actually think is that we are just whiny complainers who won't even try.

It is another one of these questions that have 2 different meanings. We all want specialist ME services but the clinics that already exist are not specialist ME centres. The people who run them have no idea what ME actually is, how it affects patients and what helps. So we answer Yes but that...

It is not ever in the blood stream just not enough for a negative test to mean it is absent from the body.

:banghead::banghead::banghead:

How much do these things make for psychologists? And how much does this influence their stance on the biomedical research? :(

It might be the individual fitbits. My readings are consistent over my fitbit, blood pressure machine and O2 monitor; ususally identical never more that 2 out. As I don't know my anaerobic threshold anyway, I use it to know if HR is going up or down and by how much. It is remarkable how well it...

ME was just ME not connected with any other illness before CFS was invented. The confusion is with chronic fatigue being used as the sole symptom of CFS. Lyme disease has it's own symptoms of which fatigue is one. While it may be possible to have both I do not see how it could be a comorbidity...

The reason enteroviruses can become chronic, in heart disease for instance, is that they do not enter the blood stream very often. Other viruses hijack the cell mechanism to make so many copies of themselves that they burst the cell open and spread to other cells. Enteroviruses replicate but...

I think we should start making a list of all the "conclusions" which include these sorts of words. I was as guilty as anyone of not noticing them but thanks to this forum they now stand out for me. It is quite astounding how much of the BPS facts have these qualifiers.

Excellent comment from you too Trish. So glad we have such articulate people explaining our problems to the wider world.

Years ago, they treated syphilis by infecting the patient with malaria using the high temperature of malarial fever to kill off the bacteria. The same approach was used for cancer with some success in the thirties but destroying the cells with radiation won out. Trauma gets lots of repair...

Language is so tricky anyway that too much weight is being put onto the answers to questions which are easily misinterpreted. Nigel Speight once reported that when he asked his young patients how their walking was now a lot of them said it was fine. He did not think they could be that much...

When we are cold we can't heat up and when we re hot we can't cool down. I wonder if the same thing happens with lots of our body systems. If it does, the amount of any particular chemical will be different in everyone so nothing significant will be found. So it is not a homeostatic shift so...

I read an article in the MS association magazine which was reprinted from one in the RA magazine - got it? That said that a lot of the fatigue in MS and RA was caused by the sheer extra effort it takes to do anything with a body that doesn't function properly. My friend with cerebral palsy could...

Hutan mentioned this "Before the 1960s people with anorexia nervosa did not give fear of getting fat as their reason for eating little. They said they were full, their stomach was upset, they were not hungry." This makes me think of me and CFS. There is a set of symptoms - not wanting to eat -...

It is never safe to assume that with ME, Michiel :) Over the years things keep getting rediscovered and it is very frustrating. Researchers leave the field or retire and no one picks up their work.