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My memory is so bad I forget that I can't do things so it keeps taking me by surprise!

One of our members has said that she was forced to let her child undergo CBT and GET because if she refused her child would be taken into care. And then there is being sectioned if we do not take the treatment voluntarily. We know these things happen so we are all vulnerable to it. Don't see SW...

A common theme with "recovery" treatments is that they have worked for the "sickest" patients but this is actually meaningless in the context. People who are very ill from the start usually have epstein barr. Herpes viruses can retreat into the nervous system after a prolonged period leading to...

I think she is just saying that exercise we can't manage is bad for us but giving up movement we are coping with is not going to help. The ME community was attacked by them saying the advice we gave was complete bed rest for everyone. She is not giving them ammunition to say we are anti...

In the 80s we had local ME groups based on Ramsay defined ME. Some people were quite disabled but as is the way with these groups people had to be able to leave the house to get there! Deconditioning was not much in evidence, some people were still working and I was not the only mother who did...

David Bell got a good response from patients using normal saline infusions which was thought to be because it restored blood volume. He said they could not do a clinical trial because how do you control saline and it was not useful as a treatment because of all the usual problems with infusions...

Ironically, the most compelling evidence for the effectiveness of vaccines is that there are people nowadays who argue against them! My mother's best friend and her sister died from diphtheria when they were 9 in 1939, how many cases of diphtheria are there nowadays? I am 65 but the attitudes...

There are many people out there with chronic diseases and disabilities who want to return to work but cannot because employers are not flexible enough to make adaptations for them. Let's sort all that out before trying to change the attitude of those people who think they can't manage.

"the absence of demonstrable pathology of the viscera or associated nerves. " It has now been found that demonstrable pathology is only missing because the bacteria that grow in the bladder do not grow on agar plates. The most likely cause for interstitial cystitis is that it is the same as...

The 71% co-morbidities rate makes it look like ME patients are going because they have other things. I never spoke with my GP about treating my ME - we just agreed that medicine does not have all the answers yet. (He retired and I was forced to explain my illness to his replacement who was...

Is there any evidence that true depression exists for people with ME more than the rest of the population? I do not mean the frustration, sadness and grieving that is a rational response to our situation. That suicide is so common is not a sign of depression (where people cannot see the hope in...

We desperately need effective treatments for mental health problems. Watching someone you love struggle with severe depression is awful. My grandson has mental problems which prevent him living. They frustrate every thing he wants to do. CBT helped him up to a point but he knows perfectly well...

Brainwashing using real poo not shampoo.

I can't understand why they say that infections are most often flu. ME was never associated with flu; when Simon Wessely followed people with flu and decided none of them developed ME it was seen as his usual way of seeming to help but deliberately sabotaging the work. ENTEROVIRUSES...

There were experiments done on muscle cells in vitro where AMP was produced. ATP and ADP cycle from one to the other easily. AMP gains phosphate bonds by a different process that is much more difficult.

Fatigue is a very subjective thing to fill in a form about. Friends with MS have done trials and discussing it with them they felt the same as me. When asked to fill in a questionnaire like this you worry about being too negative in case it makes something that is really useful seem not...

I think this discussion is very interesting and I am sorry if it feels like an attack on anyone. It is always good to hear of someone going into remission which can only move the research forward. Now that we have more research and a forum like this where informed patients and others can...

The problem with type 2 diabetes is that all the money is used to find treatments for the disease not the cause or a cure. The US diabetes charity (I do not know about the UK one) is heavily funded by drug company money and goes along with this.

I repeat what a psychiatrist (well respected!) told me years ago. "I find it hard to accept that serious disease can be caused by psychological processes" Nausea caused by anxiety or stress is not hysterical or conversion. It is a well understood consequence of the autonomic nervous system...

There is one rules in place for the protection of people yet none of them apply to people with ME. I have wondered about it for years. Before anyone enters a clinical trial they must be warned of all possible harms they may experience but not in ME. Patient surveys may be self selected so only...