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When you get down to the biochemistry of the cell, signalling problems have to be due to some damage to the way the cell should work. Whether we can detect those problems with the technology available is another question. Diabetes takes a long time to cause observable tissue damage as does high...

The PACE trial did assume there was no underlying pathology, that is why they said that no matter how bad you felt it was safe to keep on exercising. Wessley's statements about patients misconstruing normal physiological feelings also assumes no underlying pathology.

If they treated CFS the depression would lift for most people so why do we need more studies on depression? it is an admission of failure.

I went to physio for a particular pain (which was not resolved:banghead:) He did find that I had a frozen shoulder and when I was given a steroid injection it was amazing that one of the pains which just merged into the background of my usual ME agony suddenly disappeared. The consultant who...

None of it makes any sense, it is the epitome of magic medicine. We are just beginning to understand the role of glial cells, the way sleep is an ordered succession of waves and processes, the way the nervous system connects with the microbiome, I could go on and on, but unless there is a big...

My friends with MS feel that stress, physical and emotional brings on episodes. They all think they had minor symptoms for years but a serious stress episode brought on the major attack which lead to them deteriorating so badly they were finally diagnosed. (With MRIs diagnosing patients much...

You may be right, but it still ignores decades of research and, worse, clinical knowledge of patients (from a time when diseases were not defined but described) However, the fact that patients have chosen the "scientific sounding" myalgic encephalomyelitis instead of the straightforward CFS is...

"Chronic fatigue syndrome (CFS), later named myalgic encephalomyelitis (ME)" Well after that piece of ignorance you can't trust anything else they say. I hope it is online only or trees have died in vain :banghead::banghead::banghead:

I found my symptoms to be so bewildering and unexplainable that I hid them as much as possible. As a teenager I knew I would have to deal with my mother's response as well, not to mention a long walk to see our GP so it was easier got a reputation as liking to read in my room. Even years later...

It bugs me that anecdotes are conclusive for BPS treatments but surveys of thousands of patients are not. Even if the people who fill in the survey are self selected the actual numbers are high.

The CPET tests looked at fitness. On the first day ME patients were slightly deconditioned but no more than sedentary controls. Though that could have been because they were tired from getting to the centre. There have also been studies that found that people who had been ill longer were not...

I read this definition, it is not language I would use but it was very to the point. There are people who tell the truth, then there are people who lie. Liars are concerned with the truth because they want to hide it. Then there are bullshitters who don't care about the truth only the effect...

While I appreciate we need to be careful about what we say, I'm not sure what difference it would make. For decades we have been misquoted, had things taken out of context, had our words twisted, been accused of saying things we never said, had language carefully chosen to imply things that are...

When the first, really expensive, drugs for MS came out I read the explanatory leaflet and I wasn't very impressed by the results. MS is very dependant on stress levels and spending a fraction of the money on making life easier with carers and such like would probably have an even better result...

My heart rate goes up when I do anything and can go very high if I am forced to stay upright (doctor's office was worst) but from tracking my HR I have found that when I am particularly bad my heart rate drops. At the same time I can feel dizzy and ill if I try to do something. I have seen...

These things are actually quite common in ME. The neurological symptoms were sidelined when CFS was invented but intention tremor and difficulty using hands were not unusual in my local ME group in the 80s. I had absence seizures during my teenage years and read that it was nt uncommon in...

It's possible that POTS and the heart rate problems in ME are not actually caused by the same disease process.

The Workwell studies showed that the anaerobic threshold was reached at a much lower heart rate on the 2nd day. From the data in the trials, and presumably the data they have from the people they test outwith the trials Mark Van Ness has said that people with ME go into anaerobic respiration at...

I can't see how viruses could replicate enough in 24 hours to cause the problems. Exercise would have to let something change so they could thrive then they would have to go back to lower numbers as people recovered. I don't think viral loads work on this sort of timetable. It may be the answer...

I am reading a book "Cracked" by James Davies which has a chapter on how the DSM was set up. It quotes an article from the New Yorker which describes how Factitous Disorder made it into the DSM. Spitzer met up with 2 psychiatrists in Washington who had written a paper about 2 patients with...