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Malaise in PEM was the term used to describe that flu like feeling when the immune system is flared up. Lily Chu found that healthy people do not experience immunological issues when they exercise but we do and that is one of the things that makes our response to exercise unique. She makes a...

Shame, tragic

I think her sister has ME

And what do they mean by self efficacy?

I am sure it was in his book but do not have it close at hand but Ramsay said something like 25% of people in the epidemics recovered, 25% steadily worsened, while the rest were variable round what we would now think of as PEM or crashes.

Just a bit of trivia, but one of the epidemics was in an army barracks among male soldiers.

That is very interesting. It is another of these things that is so obvious when it is discovered that you wonder why it was never thought of before. The body must have a way of regulating oxygen in the cell. We think of ME as being a disease of energy production but the switch to anaerobic...

These are just as likely to be symptoms of ME rather than comorbidities. The association of fibromyalgia with ME only started after the invention of CFS. The myalgia which was often severe was not considered by the US doctors who saw fatigue as the main symptom so people were told they had fibro...

Neurasthenia was seen as a disease caused by the weakening effects of living in an industrialised society. The "back to nature" ideas of the early 20th century were a response to this. Walking holidays and such like were very popular. Despite industry closing down in most places the idea...

Just because you can do something doesn't mean it was easy for you. There is a dreadful assumption that if you manage something that is your ability level so they feel free to ask you to just try a bit - when you tried till you were dropping to manage in the first place. You may guess I have...

Is that not what a doctor does, by definition? My wrist joint hurts so I must have been frightened by my father grabbing me when I was 2 years old, is that what we have come to? It's the only thing that has made me feel better about fitting the definition for functional neurological disorder!

That's the Mary-Jane Willows who, when people phoned AYME to ask for advice, told them that LP was a very good treatment.

This intrigues me. I have PKD (as well as PNKD, non kinesgnic) and over the years have come across people with ME who have it as well. I also had a friend with MS who had it who was told that neurological disease can make a mild genetic case apparent. First of all, how lucky is she that she has...

No matter where you stand this is at best disingenous at worst .... well. The term Myalgic encephalomyelitis was brought in to describe an epidemic disease which had occurred in many countries going back to the 1930's. It had nothing to do with "fatigue states" any more than measles did. The...

Problems with the brainstem have been suspected since the 80s so this is very promising.

So there are people out there who still think that the drug addled theories of a nineteenth century quack have relevance to modern science? CS Lewis, professor of literature, spoke about talking to a scientist in the 30's. They were discussing Freud and Lewis said that Freud's views on...

My experience and that of others is no matter how many neurological signs you have if they do not fit comfortably into a disorder you are off to the psychologist before your feet hit the floor. If you have the courage to go back in a few years when your MS or whatever is more obvious you may get...

Hope - the idea that things will change and change for the better - is directly in contrast to much human experience. To use CBT to get people to believe things will change for the better in the face of all evidence and without giving them anything which will help that hope to be realised seems...

Those things are all clinical signs of neurological disease. They indicate that the brain is diseased and not working properly. Deciding that their presence is "incongruent or inconsistent" is a simple admission of ignorance. I find it akin to refusing to acknowledge a stab wound unless the...

Growing up in the 60s and then doing microbiology at university in the early 70s it was a given that some infections could leave people debilitated for some time, up to about 2 years in some cases. Flu, in particular, was said to leave people washed out and depressed with the only treatment...