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This is a description of typical EBV infection which the Americans were obsessed with at that time. Stephen Straus was brought into the CDC and given overall control of the Incline Village outbreak because he was an expert in EBV. The disease was originally thought to be chronic epstein barr...

I often wonder why people don't dread ME. I suspect it is just too scary so it is easier to think people are exaggerating. A disease which can appear out of the blue and turn your healthy active child into a bed ridden tube fed invalid is just too much to contemplate. That you will then be...

Many of the doctors I have seen have been caring but they are taught certain things as facts and never revisit them. Instinctively they know that dismissing patients is not why they went into medicine. This sort of article soothes those doubts by saying that it is the way it is being done which...

Very few people die of actual MS. The mortality comes from the same reasons as it does in ME mainly the consequences of immobility. One notable exception is when the muscles of the gut become paralysed. I have been going to an MS therapy centre since 1994. In those days MS was seen as a death...

This is one of the issues I have with FND. They treat it with physio and CBT to persuade patients that there is no actual disease. There seems no reason to think that the psychological treatments add anything. Personally I would not class therapeutic massage as a complementary treatment. They...

i had problems with hypoglycaemia for years. it was very frustrating as it cut in when i felt able to do something. Well enough to take the kids for school clothes, yay but by ten to twelve I hardly knew where i was. I was assured this was anxiety but I am now diabetic (which I think is related...

He is the one who compared it to neurasthenia. The victorians felt it was due to their version of modern life and city living but they were a long tie ago, idiot.

For what it is worth, high levels of stress make my me feel better. I believe that I work on adrenalin (or something, it would be good to have it tested). When I first read about this idea it explained many things about my illness I could not work out before. I was once in bed feeling too sick...

We do not know if our fatigue is a protective response against a problem with our biology the way it is in things like flu. If it is, stimulants could be dangerous, think of racing cyclists who die after taking cocaine to keep them going. If it is a switch that is stuck in the on position they...

Microbes are so interesting and change all the time yet they are almost taken for granted by many medical people as if they were something that was a problem in the past but not any longer. It was strange the way scarlet fever was a problem when i was a child but I never heard of anyone having...

After the birth of my first child I experienced deep black depressions. The first few times I thought it was a reaction to my circumstances which were not very good at that point. Then I noticed the pattern so when it happened after that I treated it like a pain and just endured until it went...

What it shows is that basic physiology of mammals is completely known. It may be a long time before the relevance to ME treatment can be worked out, but it gives the lie to medically unexplained as if everything was already discovered.

Talk about confirmation bias! The diagnosis remains constant because they miss the same thing all the time. If you decide acne is a sign of a mental condition then every time you examine someone with acne you will rediagnose that mental condition and think it is a robust diagnosis. Then to not...

They also found VP1 in muscle tissue and it might have been found in gut tissue as well.

It may not be relevant to what they are saying here, but one x chromosome is switched off in every cell in a woman. this is the barr body (?) that they used in sport to determine if someone was female or not. This switching off is one reason why one of identical twins can have a genetic disease...

When they started with their GET rubbish Ramsay said that what defines ME as a disease is that it is made worse by exercise so if anyone gets better with exercise they do not have ME by definition. LP cannot cure the biological deficit in energy production which is the hallmark of ME anymore...

They probably all got it at the same time. Coxsackie B gives you "summer flu". As usual with infections once you have had it your immune system remembers so that when you encounter the virus again it can fight it of so quickly you never realise it was there. Poliomyelitis, the disease, was more...

I also started being able to touch my toes after many years of ME but it felt as if I did not have the muscle tone to stop my body bending.

I can't remember who said it, he was someone in the medical establishment at the time of the royal colleges report. He said that ME was a new type of disease which was not physical or mental but held a strange position between the two. I felt at the time that you would need extraordinary...

They did a couple of brain biopsies in the UK just when CFS was invented and they found vp1 which is actual pieces of enterovirus. They also found it in muscle biopsies. Left to languish like so much else.