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  1. forestglip

    The MEpedia Primer for Journalists

    Yeah, I can even stick a graph on there to show daily views over time. Maybe even with the ability to show the graph for individual pages.
  2. forestglip

    The MEpedia Primer for Journalists

    I'm guessing it's gotten significantly more popular with time, but they haven't upgraded their server/network to handle the higher traffic.
  3. forestglip

    The MEpedia Primer for Journalists

    One thing you can do when the draft page is done and its contents copied over, since deleting isn't an option, is moving it (renaming it) to a page in the User namespace. On Wikipedia, it's common to have subpages on the userspace that are less polished or not super related to Wikipedia, that...
  4. forestglip

    BBC: How Long Concussion could offer new insights into Long Covid

    I think with every related condition, it's a big win for everyone because it's, effectively, more scientists working on the problem for both conditions. And once it's known they're related, the two groups can collaborate and share research. Plus the combined voices of patients are louder if...
  5. forestglip

    The MEpedia Primer for Journalists

    It's often really slow for me on phone and computer, wifi and cellular.
  6. forestglip

    BBC: How Long Concussion could offer new insights into Long Covid

    Link to article By David Cox
  7. forestglip

    Loss of smell and taste

    Probably. I was thinking having a fan for good air circulation might help.
  8. forestglip

    Loss of smell and taste

    I did the first test. I did not detect cinnamon in all five 0 drop tubes as well as 4 drops and 8 drops. And also, strangely, 44 drops. I did smell cinnamon in the rest of them: 12 16 20 24 28 32 36 40 48 52 56 60 So I think I need to lower the concentration of all the tubes by about half...
  9. forestglip

    Chronic fatigue syndrome post-COVID-19: triple-blind randomised clinical trial of Astragalus root extract 2024 Banihashemi et al

    The five items they later added seem to help a bit: A Brief Questionnaire to Assess Post-Exertional Malaise
  10. forestglip

    Chronic fatigue syndrome post-COVID-19: triple-blind randomised clinical trial of Astragalus root extract 2024 Banihashemi et al

    If you're correct that there was more improvement in the control but they decided to claim the herb helps because the intervention group did improve from baseline, I might cry.
  11. forestglip

    Chronic fatigue syndrome post-COVID-19: triple-blind randomised clinical trial of Astragalus root extract 2024 Banihashemi et al

    Based on just the objective results claimed in the abstract, I'm not sure why you guys are dismissing this so easily. @SNT Gatchaman Can you paste any charts showing effect size? Also, do they go into more detail on the DePaul questionnaire? MEpedia says:
  12. forestglip

    The MEpedia Primer for Journalists

    Oh lol okay I saw you add the note and hoped I could get to you before the page creation. Not a big deal. I did email the contact address for MEpedia yesterday to see if they can add a Draft namespace, we'll see if that works.
  13. forestglip

    The MEpedia Primer for Journalists

    Actually, maybe don't make a Draft page. It looks like regular users can't delete pages, so after the draft is done, there will be an extra draft page in the Main namespace floating around for who knows how long, showing up in places like stats and Random page.
  14. forestglip

    Animal research for ME

    That's true. So I'd go to the question, why does it seem okay? Is it because there's actually some difference that matters morally in all these cases, or does it just feel that way because animals are so different? To me, it mostly seems like the latter, as well as because that's how it's...
  15. forestglip

    Baricitinib Trial Poll

    REVERSE-LC was originally a pilot study and they converted it:
  16. forestglip

    Protocol REVERSE-Long COVID-19 With Baricitinib Study (REVERSE-LC)

    I can't find much on baricitinib and LC, but here's something: Demystifying Long COVID International Conference 2023, Abstract book, Page 22: Baricitinib, a Possible Therapeutic Option for Long COVID, Bertan et al
  17. forestglip

    Baricitinib Trial Poll

    One two person LC case report I found on Twitter. Most evidence seems to be about acute COVID. https://www.s4me.info/threads/reverse-long-covid-19-with-baricitinib-study-reverse-lc.36979/#post-536631
  18. forestglip

    [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?

    I thought the norm was P-E-M until I heard someone during the NIH research roadmap webinar say "pem", and I've grown to prefer it because it doesn't sound as unwieldy. Similarly, ME/CFS sounds very long and clunky to me, and ME feels so much more natural, especially if repeating the acronym...
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