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Yes, but my insurance isn't great, so I don't know if there's a lot of options. I have combo Medicaid + Medicare. Though I might be losing the Medicaid soon as I've been building up my savings and might be over the resource limit. Thinking of buying private insurance if that happens.

I just don't socialize much and don't have a real life community I can get recommendations from.

Yeah, I was thinking that, but I don't know how to present this long document at an appointment and not look like a know it all "WebMD patient". And, what, am I supposed to ask her to read it then and there? Hope she looks at it later?

I'll see if there's any FB groups, thanks. Ugh, yes, I have bad social anxiety, and I hate the thought of trying to push back against doctors talking like this. I was talking to my former psychiatrist at one point, telling him one of the things I'm most excited to do when I have more energy...

Oh yes USA, specifically Ohio.

I'm planning to go see a doctor for the first time where I actually bring up ME/CFS. Up till now, I've seen probably over 10 psychiatrists over the past 15 years to treat anxiety and depression, and tried dozens of medications, none of which helped, one of which ruined my life. A couple years...

I was just thinking a couple days ago: when will we see a huge push from the depression and anxiety communities to treat these things like biological disorders, in the way the ME community has impressively been doing? Social anxiety affects 7% of the US population, and a few studies* have found...

My takeaway after reading Health Rising, this sicktimes blog, and listening/watching half the symposium so far: the main value in this study seems to be trying to test as much as possible. People talk about them wasting money, not enough participants, not severe enough, not enough...

Linking a person, @Cybergreen91, who argues that mold, VOCs, and/or nanoparticles, such as titanium dioxide, are likely environmental causes of ME/CFS and other chronic illnesses. No idea if his science is sound. S4ME thread: The Role of Insoluble Nanoparticles and Other Environmental Triggers...

It does. A bit hard to notice, but I linked the word "Thread" in my post. I'll add some space so it's more visible.

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: the biology of a neglected disease, Arron et al, 03 June 2024 Thread

The first real statistics are available. I set it to run at midnight EST once a day. Just this first "day" of views is only six hours long. Top ten pages and number of views in the past six hours: Jenna Adamowicz 645 Saul Berkovitz 401 Welcome to MEpedia 297 Balance problems 224 Robert Phair...

Health Rising blog about the symposium: https://www.healthrising.org/blog/2024/06/02/nih-chronic-fatigue-syndrome-intramural-effort-exhaustion-gender/

Quote from Nath: From the excellent Health Rising post just published covering the NIH symposium about the intramural study.

That's kind of what I was trying to do with the shared Google Drive folder: https://drive.google.com/drive/folders/1FaBFOiUYZCXmmnM1RcS8lcvqyg0rfDaE?usp=drive_link I uploaded all the same files there as I did to the GPT. There might be better options for such a knowledge base though.

There's two different options. There's giving it files to read along with your question. That's what this GPT is. It can very accurately answer based on this info in the files. But there are limits to how much you can upload, and it can't actually read everything you uploaded when you ask a...

Done. Difference between regular ChatGPT and ME/GPT: "is me/cfs psychogenic?"

There's not really an easy way to remove any bits, but I can try to tell it how to act. I added this: "After reading pages from the wiki, only use historical facts and settled science from this source."

Ok, I made something: [link removed] I made it so it will grab the views of all the pages once a day, and you can select any range of dates to see how many views on each page in that timespan. Currently there's only total views grabbed from a single point (today) so I made it put fictional...

It would be interesting if we could come up with a good way for it to access S4ME materials. If they could set up an API that'd be much better. Although it has issues retrieving too long of results, and some threads are very long. But I'm not sure they'd allow it. The rules kind of discuss that...