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  1. forestglip

    Using deconditioned people as controls

    Merged posts And please also compare to very deconditioned or other unhealthy people so we know whether or not the biomarkers are found in all deconditioned or unhealthy people. In that linked thread, we brainstormed some potential deconditioned control groups, such as bedbound hospital patients...
  2. forestglip

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    That's wild. It sounds like they're just saying choose whichever option returns the largest desired effect. Do they go on to explain how to decide whether or not to include single responders?
  3. forestglip

    Alzheimer’s scientists and falsified data

    Thread about another recent Alzheimer's falsified data story: Researchers plan to retract landmark Alzheimer’s paper containing doctored images
  4. forestglip

    Tool to see daily view counts on popular pages of MEpedia

    Lots of research into outbreaks over the past week. Top pages:
  5. forestglip

    Long Covid-19 and an effective lightning process intervention: A case study, 2024, Arroll et al.

    I'll paste what I previously said on the forum: I'll say that it's very hard to notice that you're doing an activity because you've already improved a small bit, and not the other way around, and I can see why someone would be absolutely sure it healed them if they stay well afterwards and...
  6. forestglip

    Dianna Cowern, Physics Girl, fundraiser 2024 and other news

    More info from the Facebook post: "Pre-recorded interviews from experts — - Linda Tannenbaum, founder and CEO of the Open Medicine Foundation. Interviewed by Derek Muller from Veritasium. - Dr. David Kaufman, an ME/CFS specialist. Interviewed by Vanessa Hill from BrainCraft. - Dr...
  7. forestglip

    Dianna Cowern, Physics Girl, fundraiser 2024 and other news

    Will be hosted by Simone Giertz and Ian Hecox (second person is half of the Smosh channel), fellow Youtubers with 2.72M and 26.7M subscribers respectively. Live stream will be on the Physics Girl Youtube channel.
  8. forestglip

    Well-known, famous people with Covid-19 and Long Covid

    The physician is Natalie Grams.
  9. forestglip

    Skin Biopsy Detection of Phosphorylated α-Synuclein in Patients With Synucleinopathies, 2024, Gibbons et al

    Thread for previous study by the author: Cutaneous α-Synuclein Signatures in Patients With Multiple System Atrophy and Parkinson Disease, 2023, Gibbons et al Thread for study of α-synuclein in POTS: Cutaneous alpha-synuclein deposition in postural tachycardia patients, 2021, Levine et al
  10. forestglip

    Skin Biopsy Detection of Phosphorylated α-Synuclein in Patients With Synucleinopathies, 2024, Gibbons et al

    "Follow up studies are in the works. Both NIH RECOVER and CND Life Sciences will be investigating the prevalence of the #Parkinsons biomarker in #LongCovid via skin biopsy." "This will be an excellent complement to the post-COVID RT-QuIC (another PD biomarker) study coming out of Innsbruck."...
  11. forestglip

    Skin Biopsy Detection of Phosphorylated α-Synuclein in Patients With Synucleinopathies, 2024, Gibbons et al

    Skin Biopsy Detection of Phosphorylated α-Synuclein in Patients With Synucleinopathies Authors Abstract Importance Finding a reliable diagnostic biomarker for the disorders collectively known as synucleinopathies (Parkinson disease [PD], dementia with Lewy bodies [DLB], multiple system...
  12. forestglip

    Well-known, famous people with Covid-19 and Long Covid

    She's almost certainly not writing any of this herself. Almost all her tweets are written by her husband. I'd assume he would be pretty familiar with terminology by now, but maybe it's someone else from her team that did this one.
  13. forestglip

    Well-known, famous people with Covid-19 and Long Covid

    Dianna Cowern aka Physics Girl's Instagram "In one week Dianna is live-streaming a full day of her life to share what the experience is like for someone suffering from chronic fatigue. Dianna and Kyle are raising money to support research and clinical trials for long COVID. The live stream...
  14. forestglip

    First test for long Covid gets EU approval, August 2022 - IncellDx incellKINE Long COVID test

    Here are the references from that test page: Thread on the last reference: Immune-Based Prediction of COVID-19 Severity and Chronicity Decoded Using Machine Learning Weird that they just have two references and make it seem like four. One is just plain duplicated, the other they cited both...
  15. forestglip

    First test for long Covid gets EU approval, August 2022 - IncellDx incellKINE Long COVID test

    It looks like this test might now be available to the public: "Our partnership with IncellDx, a leader in cellular diagnostics has led to the launch of the IncellKINE test, a cutting-edge chronic inflammation test capable of determining Long-COVID, Lyme Disease or ME-CFS, now available in the...
  16. forestglip

    Clinical trial: Temelimab as a disease-modifying therapy in patients with neuropsychiatric symptoms in Long COVID (or PASC)

    GeNeuro Announces Results of the GNC-501 Study in Post-Covid-19 Syndrome "The GNC-501 clinical trial is a Phase 2 study in patients suffering from post-COVID-19 neuropsychiatric syndromes, testing temelimab against placebo. The study enrolled over 200 patients in Switzerland, Spain and Italy...
  17. forestglip

    GPT for ME/CFS Questions

    As $20 per month is kind of significant for me, and it doesn't seem like this is being used a lot, and I don't need ChatGPT Premium for anything else, I'll be canceling my subscription. ME/GPT will continue to be available until July 1st. If anyone else has a premium subscription and wants to...
  18. forestglip

    Tool to see daily view counts on popular pages of MEpedia

    I just can't think of anything else. Maybe because it's gotten slower, but it didn't get much slower on the 18th and beyond as far as I know. I wouldn't think it'd be a constant 10k though, since it probably grew in views over time and wouldn't have 10k/day immediately.
  19. forestglip

    Tool to see daily view counts on popular pages of MEpedia

    I thought maybe it would line up with searches on Google for ME/CFS, but it seems to be pretty consistent over the past 90 days. My guess would still be the Twitter campaign made it popular temporarily.
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