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Hypocortisolemic ASIA: A vaccine-and chronic infection-induced syndrome behind the origin of long COVID and myalgic encephalomyelitis (Provisionally accepted) Manuel Ruiz-Pablos 1, Aintzane Zabaleta 2, Bruno Paiva 2 1 Complutense University of Madrid, Madrid, Madrid, Spain 2 Center of Applied...

From ME/GPT AI: Multiple Sclerosis (MS) Systemic Lupus Erythematosus (SLE or Lupus) Celiac Disease Hashimoto’s Thyroiditis Endometriosis Migraine Honorable mentions because they satisfy all but female preponderance criteria (before treatments and tests were developed)...

I put "unaffiliated" under institution and gave a brief description of what I'd hope to use the data for when I applied a couple months ago, and my account was approved. I can't remember how long it took to be approved. Edit: I remembered I can check my emails for dates. It took four days to be...

The Press: "Young father with chronic fatigue desperate to get well for his family" "Tyrone Hauraki’s limbs feel like they have ropes tied around them. He’s exhausted every day. He has brain fog, and a tickle in his throat that does not go away. Bright lights hurt his eyes, conversations are...

Subjective brain fog: a four-dimensional characterization in 25,796 participants Ali Alim-Marvasti, Matteo Ciocca, Narayan Kuleindiren, Aaron Lin, Hamzah Selim, Mohammad Mahmud Abstract Importance: Brain fog is associated with significant morbidity and reduced productivity and gained...

I can't figure out how to eloquently say this, but I'll add that something like fundraising feels much harder than browsing the research landscape. The willpower itself to do something that feels less interesting takes energy, even if it seems to require the same amount of energy typing on here...

Test a large number of people for as many common toxins as possible, including things like DDT, Dieldrin, HCBs, PCBs, Mirex, Lindane, Mevin-phos, p-dichlorobenzene, Pentachlorophenol, Carbaryl, Toxaphene, and look for any correlations with symptoms. Not necessarily limited to ME symptoms, it can...

Faecal microbiota transplantation for sleep disturbance in post-acute COVID-19 syndrome Raphaela I. Lau, Qi Su, Jessica Y.L. Ching, Rashid N. Lui, Ting Ting Chan, Marc T.L. Wong, Louis H.S. Lau, Yun Kwok Wing, Rachel N.Y. Chan, Hanson Y.H. Kwok, Agnes H.Y. Ho, Yee Kit Tse, Chun Pan Cheung, Moses...

Yeah maybe, but seems to be a dramatic drop four days ago (yesterday still low), but it's been slow for longer than that.

Interesting. It could be. But I just searched a few random things (PEM, David Tuller, Avindra Nath, 2-Day CPET) and MEpedia was always one of the first five results.

A Couple's Quest To Stop A Rare Disease Before It Takes One Of Them, 19 June 2017 (This is about fatal familial insomnia, a prion disease.) "In less than a year, Sonia's mom died. An autopsy showed Kamni had died from something rare -- a prion disease. Specifically, one called fatal familial...

Follow up article from The Guardian: Second Canadian scientist alleges brain illness investigation was shut down "A senior Canadian federal scientist has alleged that the government shut down an investigation into a mystery brain illness in New Brunswick that he believes may have affected 350...

Views on MEpedia seem to have gone way down the past three days. I wonder why. Maybe the lower numbers are more normal, and the tracking only started after the start of a temporary upswing, maybe caused by something like the JonVsJonVsME campaign three days before the start of the data.

Aren't "long COVID" and "PASC" interchangeable? They keep alternating between the terms and also the last sentence makes it seem like two different things. From Mayo Clinic Proceedings: I think they're trying to say long COVID including obvious MIS-C is similar to long-COVID without it. My...

Evaluating myelophil, a 30% ethanol extract of Astragalus membranaceus and Salvia miltiorrhiza, for alleviating fatigue in long COVID: a real-world observational study 20 June 2024 Jin-Yong Joung, Jin-Seok Lee, Yujin Choi, Yoon Jung Kim, Hyeon-Muk Oh, Hyun-Sik Seo, Chang-Gue Son Background...

I hope I don't come across as presenting anything in this thread as fact. My goal is to make people even aware it's a possibility so that maybe actual research can happen which actually can determine if it's a fact. As it stands, research or even discussion about environment causing ME seems to...

The Guardian: "Top Canadian scientist alleges in leaked emails he was barred from studying mystery brain illness", 3 June 2024 Follow up article: "Second Canadian scientist alleges brain illness investigation was shut down", 21 June 2024

The potential link to humidifier disinfectants seems to be based on this survey, though I can't find it online: ---- Cort's blog is partly talking about how GWI and ME/CFS may be different because not all people with GWI have abnormal 2-day CPET: But this seems like the same thing as long...

None of the sources about HDs in the intro where they discuss a potential link even mention CFS or PEM. (Edit: Seems to be based on a survey mentioned in reference 25.) They didn’t recruit based on if the CFS symptoms came after HD exposure, as far as I can tell: They make it clear they are...

If anyone lives in the US wants to contact congress people, this site will tell you all your representatives.