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  1. Barry

    My letter to the CDC concerning Kaiser Permanente still recommending GET

    This statment by SW acknowledges that there may be some cases where exertion is to be avoided; no ambiguity. He also confirms no one has any idea who these people are; no ambiguity. He also says that in general such advice is counterproductive, tacitly acknowledging therefore that in some cases...
  2. Barry

    Rethinking the treatment of chronic fatigue syndrome—A reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT

    Quite. They would not have needed to do the full-blown analysis to have a very good idea which way the wind was blowing.
  3. Barry

    Rethinking the treatment of chronic fatigue syndrome—A reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT

    Possibly akin to writing an exam paper and students then taking the exam ... only to then modify the exam paper (having already had some sight of the students' answers) and then mark the student's answers against that modified paper? Is that a valid analogy, or am I being a bit unfair here?
  4. Barry

    Call to Action: Westminster Hall (UK) (parliamentary) debate: PACE trial and its effect on people with ME - Carol Monaghan February 20

    Definitely not luck of the draw. It basically shows how important this debate is, to hopefully raise awareness, interest and understanding.
  5. Barry

    Call to Action: Westminster Hall (UK) (parliamentary) debate: PACE trial and its effect on people with ME - Carol Monaghan February 20

    Not sure what the right content is, but the best approach I think is to assume most of the MPs are completely ignorant of the issues, and unlikely to comprehend within 30 mins anything but the most clear-cut hard hitting single-issue argument. Which is why I think the COI focus would be good, as...
  6. Barry

    Hand dryers suspected of spreading fungi and moulds

    I've not pursued it now it's sorted. But the difference is dramatic. My knuckles were splitting in several places, each up to 5+mm long, and I would think 1-2mm deep, quite unpleasant. Defied all manner of creams I tried. Several months now since I stopped using the dryers and all fine. Although...
  7. Barry

    Hand dryers suspected of spreading fungi and moulds

    I've stopped using these at my work. For some years the skin on my hands had been splitting quite badly, and it dawned on me when I spent a few weeks off work and my hands were OK again that it might be work related; they got bad again after a few weeks back at work. The 'obvious' culprit was...
  8. Barry

    OMF claim that Naviaux has replicated 77% of the metabolic pathway abnormalities found in his 2016 publication via Facebook

    Maybe there are mechanisms working in opposition? The cell defence mechanism trying to shut things down, and normal cellular operation trying to carry on regardless? Whenever you have complex systems with opposing forces at work, there is the potential for over- and under-swings, as regulatory...
  9. Barry

    Government and Insurance companies - establishing the BPS model

    Certainly is a lot of deception :rolleyes: :yuck: :sick:
  10. Barry

    Call to Action: Westminster Hall (UK) (parliamentary) debate: PACE trial and its effect on people with ME - Carol Monaghan February 20

    See also @Sly Saint's new thread ... "Government and Insurance companies - establishing the BPS model" https://www.s4me.info/threads/government-and-insurance-companies-establishing-the-bps-model.2319/ ... which looks very relevant.
  11. Barry

    Rethinking the treatment of chronic fatigue syndrome—A reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT

    But in the case I was talking about, somebody had said the participants had in some cases had to stop doing some of their normal activities so they could maintain their activities for Peter White's PACE trial. So even if it looked like some objective measures were similar at 52 weeks to...
  12. Barry

    Rethinking the treatment of chronic fatigue syndrome—A reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT

    Very much akin to "I'd entered a race I was not good enough for, so if I'd not tripped the other bloke up I would not have won."
  13. Barry

    Rethinking the treatment of chronic fatigue syndrome—A reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT

    Also worth keeping in mind that one of the PACE participants recently observed (cannot recall where, maybe in a response to one of DT's blogs?) that even the objective measures were not really that objective, because in order to meet the trial's physical demands, they backed off from some of...
  14. Barry

    Call to Action: Westminster Hall (UK) (parliamentary) debate: PACE trial and its effect on people with ME - Carol Monaghan February 20

    It also has knock-on consequences for later state pension entitlement, because only certain DWP sickness payments accrue National Insurance credits, and are much harder to get if mis-classified as mental health.
  15. Barry

    Call to Action: Westminster Hall (UK) (parliamentary) debate: PACE trial and its effect on people with ME - Carol Monaghan February 20

    The really strong points to bring out re psychological diagnosis are: It has nothing to do with stigma. Is a misdiagnosis, with all the attendant issues that misdiagnosis of any condition brings.
  16. Barry

    Rethinking the treatment of chronic fatigue syndrome—A reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT

    Which, to me, cascades into what seems another underlying problem: The investigators apparent dismissal of objective outcomes as having any relevance or importance. It's as if their whole mindset is along the lines of: We know ME/CFS is a psychological problem; psychological problems are only...
  17. Barry

    Rethinking the treatment of chronic fatigue syndrome—A reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT

    Aren't the authors simply saying the PACE investigators changed how they were going to interpret the outcomes long after the outcomes data were available, thereby allowing the PACE investigators to cherry pick the most favourable interpretation methods? Or maybe I'm missing you're meaning here...
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