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I was told that this trial was going to be published in 6 months' time, which was last week. Since it hadn't, I contacted them asking for an update. They then asked the researchers and this is the result: I have heard back from the study team The study has been submitted to Pilot and...

Here: https://www.thetimes.co.uk/article/women-need-the-playing-field-levelled-on-health-outcomes-vgg0fv0zk When women do seek out help, they are frequently disbelieved. My favourite diagnosis is something called “Medically Unexplained Symptoms” (Mus). This is a catch-all phrase for things...

Just to clarify: they proposed that CBT and GET are effective. They conducted small, poor trials and found evidence to support their claim. They then attempted to replicate those findings in a bigger trial and failed. There is no need for further replication. Conducting another large trial on...

Although I say this is about the replication crisis, the 'data thugs' don't actually look to replicate. They look at trial data and reveal flaws: so if for example someone did a coin toss and claimed they found HTHTHTHTHTHT, etc, then they'd point out that looks wrong. As for replicating PACE...

They are aware of PACE. Nick Brown was a PhD student with James Coyne. https://www.dropbox.com/s/lnrfww3dw3asv1x/%E2%80%98I%20Want%20to%20Burn%20Things%20to%20the%20Ground%E2%80%99%20-%20The%20Chronicle%20of%20Higher%20Education.pdf?dl=0

It's about the 'data thugs' who have been challenging junk science, Nick Brown, James Heathers and Jordan Anaya...

Right, OK, thanks. Sometimes I get a bit overly suspicious.

I've just been listening to an excellent radio programme on it. https://www.bbc.co.uk/programmes/b0bgrhy1

A few things look questionable to me: I don't trust Pariante and he gets two slots. It seems to me that he's trying to introduce beliefs through the back door. Inflammation, but one that can be treated with CBT. I don't like the attempt to link FM, IBS and ME. That looks very dodgy to me. The...

Oh right. Didn't mean to be rude about a friend of yours. Perhaps his experience in Kuwait led to a different view of life. It must have been horrific. I'm not sure why he left PACE. He left the MRC Health Services Research Collaboration in 2007. Looking at his CV, perhaps he left the DMEC when...

I haven't seen or heard anything. Dieppe is on the dark side. He's into all sorts of quackery: The Clinical Disability Paradox as a Window to Health and Wellbeing, Health & Wellbeing Network, University of Exeter, programme 2012...

And the one left on this independent committee was psychiatrist Charlotte Feinmann who had co-authored with... Wessely.

Just looking through these minutes. At meeting #8 of TSC, [redacted, who we know is Paul Dieppe] retires from the DMEC but is not replaced. The next meeting is a joint one of the TSC and DMEC where the changes to the trial outcomes are approved. [Redacted, my guess Astrid Fletcher] from the...

It shows, I think, how these illnesses are generally understood, and also how the majority of people are absolutely convinced about the psychological factor in illnesses. 'It stands to reason.' It's deeply entrenched. 30 years ago the businessman with a stomach ulcer from stress was a media trope.

This is the kind of article I hate. Trying to be sympathetic but perpetuating the psychological myth. https://www.thetimes.co.uk/article/kirsty-young-must-go-softer-on-herself-during-break-from-desert-island-discs-2pkjdbfbn Includes: I worry, though, that Young’s affliction is a form of...

I note you haven't addressed the factual error about AfME's involvement only starting in 2007 which I raise here. https://www.s4me.info/threads/action-for-me-the-pace-trial-and-behavioural-treatments-for-m-e-position-statement.5532/#post-99817 If you want evidence, I can provide you with the...

I saw that and think it's an interesting story. Did her experience of standing up for bullied researchers make her more open to believing the harassment of PACE researchers stuff?

I've just been looking at that site: First, only researchers at institutions can access it, and it was you patient scientists who revealed the flaws in PACE. Second, any new analysis has to be set out beforehand, so no digging around in the data to sniff out problems, and the data cannot be used...

I think this is really welcome and thank @Action for M.E. I would just point out that the support for the trial was from before 2007. It started in 2002 with a letter of support to the MRC and the first meetings of the TSC were in 2004.

That's very interesting. The PDF of Sensky's 1990 is here http://europepmc.org/backend/ptpmcrender.fcgi?accid=PMC1662417&blobtype=pdf They are in effect saying that our belief we're ill is our illness and the more we insist on our illness, the more ill we are. It's an extraordinary position.