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    No moderating impact of a medically unexplained etiology on the relationship between psychological profile and chronic pain, 2018, McNaughton et al

    and is sold as a first point of call diagnosis by certain individuals for whatever % they get away with quota-ing to the gatekeepers as 'you should be seeing and diagnosing'
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    COFFI - The international collaborative on fatigue following infection

    The CAC committee - catchy and coming from a background of marketing I find their choice of the term 'consumer' and 'advisory' insightful. Demonstrates they see a third party relationship (marketing to others who might persuade the 'consumer' they have to do x based on 'apparently Paul said it...
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    Framework for systematic reviews on psychological risk factors for persistent somatic symptoms & related syndromes & disorders (PSY-PSS) 2023 Hüsing

    Nope sadly as someone with an actual psychology degree I've watched as people from any other background than scientific psychology has decided to wonder themselves into coaching or 'brainwashing techniques' (CBT is just a delivery mechanism and someone with a qual in that isn't qualified to know...
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    Framework for systematic reviews on psychological risk factors for persistent somatic symptoms & related syndromes & disorders (PSY-PSS) 2023 Hüsing

    Precisely it. And only gets worse because you'd have to be self-flagellating given the requirement for literature reviews etc to, even if you could produce research that required 10x the time given (because timescales have been tallied to doing not-proper designs), you'd have few other papers to...
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    Framework for systematic reviews on psychological risk factors for persistent somatic symptoms & related syndromes & disorders (PSY-PSS) 2023 Hüsing

    Yes, psychosomatic was only 'under' the field of scientific psychology on the basis of it being one area that needed to be 'audited' and kept to standards, not because it is actually psychology. It, in a way is like if Criminology as a field was instead written by those who were criminals...
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    Framework for systematic reviews on psychological risk factors for persistent somatic symptoms & related syndromes & disorders (PSY-PSS) 2023 Hüsing

    Yes interesting to have the full list. Or alternatively we can take one from the psychiatry list and define the 'they think this exists, rather than admit it is their own bigotry' syndrome suffered by all those who believe this: and just call this billions and billions of pounds/dollars etc...
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    The effect of melatonin on irritable bowel syndrome patients with and without sleep disorders: a randomized double-blinded..trial, 2023,Dinevari et al

    I'm so used to reading dodgy methods I was cynical when reading their description of placebo-controlled etc so had a look. But it does seem they divided each group equally etc. And that when looking at the figures for the IBS stuff it did seem to have an effect just as much on those without...
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    No moderating impact of a medically unexplained etiology on the relationship between psychological profile and chronic pain, 2018, McNaughton et al

    Yes, the result without their wording says exactly that: more pain = more likelihood of psychological distress, whether the doctor was out that day/refused to look at someone based on their hair colour or not But their wording has tried to invert the causal logic. Which is very obvious when you...
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    No moderating impact of a medically unexplained etiology on the relationship between psychological profile and chronic pain, 2018, McNaughton et al

    Yep. They've inverted the wording/cause and effect for their own sly purposes. None of this is science or medicine or psychology in the science sense it is linguistics and usage of intellectual dishonesty/sophism to 'reframe' reality/lead the witness. If you think: those with greatest pain =...
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    No moderating impact of a medically unexplained etiology on the relationship between psychological profile and chronic pain, 2018, McNaughton et al

    Yep it is basically just spelling out the logic of the words then really isn't it - if you actually ascribed to those basic things of reality: like logic, reality, meaning. Someone with a lot of pain is someone with a lot of pain. Medically Unexplained actually means 'medicine available to...
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    Research news from Bhupesh Prusty

    and society prevents it - I've had individuals direcly ensuring I could neither get peace nor rest, to an extreme level, for most of my being ill. In fact I find it hard to name a point in decades where I didn't have at least one individual nearby who ensured I never had the rest 'normals' did...
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    Research news from Bhupesh Prusty

    Agreed on the sheer size of disability that needs to be attributed to actions of others. As if the disability size wasn't already huge enough with ME to begin with. You can neither easily hide it longish-term without taking people criticising you for things caused by the illness as personal...
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    Low dose Naltrexone - How might it work biologically in ME/CFS?

    It is interesting isn't it. My note re: the antidepressants analogy was really to note that the 'spiel' tends to always infer specific, where there are a lot of antidepressants these days that are used off-label or for other purposes. So I'm intrigued to be open-minded to the potential that...
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    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    A carefully-chosen word there isn't it 'revisiting' vs any other possible alternatives that might have certain meaning/outcomes attached to them. And yes intriguing to track back the timing of decision to hire a head of governance (a year start-to-'in post' seems reasonable estimate) with...
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    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Wow, interesting. I thought there would be more strategic dallying. Or more strategic a reply. And we'd all have to wait to see what came back. And it would be a less direct answer of 'who they are' (based on how they handle things). But then I guess the only information it confirms is 'that...
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    ‘Electrifying’ book about women with disabilities sells for six figures - Frances Ryan book

    yes the knock-on effect is very much needed. In pop culture too. I’ve watched a few ‘medical’ soap opera type things over recent years and to say they are tropes us an understatement. I’m quite shocked for example if you look at Chicago med. almost every episode some woman with a mind-caused...
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    Low dose Naltrexone - How might it work biologically in ME/CFS?

    I was thinking along same lines of looking up Narcan and seeing what it actually does: undoes the effects of opioids not necessarily eg getting rid of the opiods. But the focus seems to be e.g. breathing, it doesn’t work on overdose with eg alcohol or other drugs. And isn't long-lasting ie 30-90...
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    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I was initially thinking that ensuring the timescale that/length of wait Cochrane take to find an independent process to deal with complaints is made transparent is useful at this stage just in case. How organisations are capable of dealing with these things appropriately and their ability to...
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    Brain fog, cognitive dysfunction

    Agreed on this one. Here's a simple 'experiment': when already not a 'good day' (but not bad as I'd got out of the house) I had to be taken to an appointment in the car. There were lots of road works meaning uneven surfaces lots of swinging round and stopping because of one side of road closed...
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    Talking therapies linked with reduced risk of cardiovascular disease

    I wish, these things seem to get pushed in through the GP pathways with claims of 'the never never' being reduced. Based on the fact that people who were less ill and had a working situation where they were more able to attend regular sessions of anything - it could have been balloon animals...
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