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The like is for your efforts not the tribunal decision of course. they continue to rely on the deceit that all scientists and experts in clinical trials consider the trial a rousing success. And with regards to our doggedness as a community to dismantle bad science the tribunal did not take...

Maybe. I actually hope that it's driven merely by the idea that it saves money as that can be argued against realistically. But I have some niggling sense that there is more to it and that reasonable debate will not move the opinions at all. And how do they get so many people to believe...

MEpedia still down. How long does it take service providers to fix things?

I'm wondering what it would look like to offer up something better as an alternative to MUS. Does it all come down to money? If money were no object would Dr's be unstressed at trying various things to get at a real diagnosis? I read this stuff and honestly I again feel deflated as it seems...

Funded through Economic and social research council. This is a link to their research ethics: https://esrc.ukri.org/funding/guidance-for-applicants/research-ethics/ I have no idea if this is useful. I don't have the wherewithal to look. And as it seems that ethics actually steer clear of...

The HPA axis theory of our illness is nothing new. It has been discussed at length elsewhere and there are some threads here as well. https://www.s4me.info/threads/medscape-article-just-a-myth-it-may-be-time-to-take-adrenal-fatigue-seriously-2019-by-john-watson.8486/#post-149155...

I find stress is a bit of a woolly concept as there are various types of stress. Having been ill for a long time now I've considered that this issue can also be looked at from the other side. Usually a question like this is meant to elicit times when stress made the symptoms worse but it...

Has anyone ever counted the total number of psychologic studies vs biomedical research studies from the UK? Here I don't mean mind/body duality but just studies that are about psych treatment or understanding supposed psych mechanisms/issues of people with ME. I would expect the ratio to be...

Or the Hindenberg.

I don't know what's on the other site but I agree with @SallyC that there needs to be some parameters set as to meaning of things.

I would like liaison psychiatry to start talking about social issues around chronic illness. How about they start being advocates for social change that would have a positive impact on people with chronic illness. This of course will never happen. Not with this lot. The psychological factors...

Thanks. As soon as I read it I realised that I had seen them mentioned before. Appreciate the reminder.

Maybe their hope is to get loads of the 'reformed sick' to be the educators. Don't want to make it too taxing. Completing the circuit to shine the light so to speak.

Hi @Peter For clarity and transparency -- do you know who the governing body is that would oversee ethics of any prospective LP trial? Do you have a link? I always like to keep track of the various players.

Whaaaat? A new researcher? That can't be right? Nobody new would brave this field would they? I heard (from a super reliable source) that they were all running away screaming from angry ME hordes. OK I'm done now. now back to the study . . .

In a perverse way the foolish support of LP by people who call themselves following science pleases me. There is no way to support this LP notion with real science and people are going to notice (I'm hoping sooner rather than later) and it will really put paid to more of the nonsense ideas...

Thanks for taking the effort to do this @ScottTriGuy It would be a very useful and insightful statistic to find (eventually) how many MD's are diagnosing depression that then turn out to be ME. so many implications for pharma, MH services, and ultimately for the person diagnosed. I hope...

More on the subject--a Q&A with Ivan Oransky: https://retractionwatch.com/2019/03/21/time-to-say-goodbye-to-statistically-significant-and-embrace-uncertainty-say-statisticians/

It gets complicated though. It seems to me that not only do the BPS crowd expertly wield propaganda but they also use the underdog devices -- such as subversion of the others message.