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Ah, but they aspire to be. ;)

Yes, I don't see how they can find a way through to good robust research and/or taking in patient experience when their are ideological/self-interested/politically motivated people as part of the EUROMENE team. But they do seem to be well aware of this. See here.

https://en.wikipedia.org/wiki/Mistakes_were_made

For me there is a small point here to be made. It stems from this issue but is a little broader (so includes CoI). Making new and improved policies around CoI or other important issues in the process of accepting research and clarifying it's potential problems or limits is all fine and well...

https://www.clpsychiatry.org/about-aclp/vision-mission-bylaws/ An organisation without any relevance to illness except as unwitting (and possibly coerced) users of their product. Absolutely about empire building/business opportunities and NOT about medicine. A vehicle for disseminating...

Forgive me here because what I'm trying to say will be a little vague and I am always a suspicious of motives type of person. I may have the completely wrong idea but I wonder if the choice of FMT research stems in part from not just specific concerns of researching ME but also works to have...

Moved from Norway - CFS/ME Research Conference Nov. 25th-26th 2019 Thanks for your response. I hope the project findings get more wide spread attention over time.

Moved from Norway - CFS/ME Research Conference Nov. 25th-26th 2019 @Kalliope Those are seriously good slides of information. Thanks for providing us with the info. I do have a question and scanned for the answer so sorry if I missed it but I'm wondering now who was the target audience and...

Could it be that the real people behind the problem find it easy to hide by being identified as the journal? Repeatedly we hear the journal failed to respond. Well who is the journal exactly? There is reluctance to call out the real individual people who protect the system status quo which is...

More from the text: When we first submitted our concerns about the 33 trial reports to JAMA in March 2013, we were naively hopeful that retractions would quite quickly follow. We soon learnt otherwise. Journals were, and are, extremely reluctant to even publish expressions of concern – JAMA...

I don't know. I don't doubt their commitment.

There's also Cure ME.

Well, I knew my post would get a response. I understand the tax law thing. It's just that it's not like there aren't any other groups that could be donated to in other places. It's just my opinion but I feel that more breadth of research is good. If @rvallee 's post is correct then this...

Sorry but why the new franchise? It starts to look like empire building. There is never a single announcement from OMF without a donation appeal. I'm starting to feel squeemish. I'm not trying to knock what their doing or have accomplished. Just saying how it starts to look is all.

Pediatrics journal abstract: https://pediatrics.aappublications.org/content/early/2019/11/25/peds.2019-1522

Part of the authors conclusion: [What should we do? It is time that journal editors agreed to a moratorium on the publication of meta-analyses, especially those whose analyses are based on very few events reported in only a handful of trials. Sadly, the current peer-review process no longer...

Just for some context this is what the NHS defines health anxiety to be: https://www.nhs.uk/conditions/health-anxiety/ From the conclusion section in the paper: This study identifies HA as an important target for treatment, trial findings should be further replicated on a larger scale. Does...

Using some form of oral pain relief inevitably ends up being a blunt instrument. I have found it helpful too at times as I have fibro also. Anything that helps is also inevitably temporary but there are things that have worked for me. I use hot or cold on the site. It depends on what feels...

In the comments the author considers the possibility that commentary 'trolls' are some of the people who fear progress. Well, thanks to this Dave Barry guy for the ME mention. Much appreciated.

https://jamanetwork.com/journals/jama/fullarticle/2756187?guestAccessKey=c1202c42-e6b9-4c99-a936-0976a270551f&utm_source=For_The_Media&utm_medium=referral&utm_campaign=ftm_links&utm_content=tfl&utm_term=112619