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While this drug trial is preliminary and there is plenty of questions to ask and plenty of answers to get, there are some out there who are completely out of options, in horrible situations without health care. In that case, with a positive publication (not perfect) and considering that the...

When they go low, you go meow!

Quasi-experimental means that they control all variable, perhaps except whether the practicing physician who diagnoses knows the difference between ME and FM and are able to determine whether the patient has one or the other, or both.

PG mentioned. Suddenly only his experience matters.

That’s an interesting comment @leokitten and it is a possibility that is worthy to be tested however in my case, my disease severity hasn’t changed much throughout the years, i spend time outside. But while i can wake up at 9 AM if I had to (and pay for it afterwards) i seemingly do much better...

I had metabolomic hormonal testing done which showed out of range metabolites. Of course these were not clinical tests, but it showed abnormalities. What it means and how to fix it, that’s another story.

It is always good to thank your funders. It seems like they did just that, also informing about why they reached out to the ICU community. Here is the newsletter article, which links directly to the paper:

The interesting part of ICU patients, is that patients who survive their ICU stay may be developing symptoms similar to ME- and when i say this i have the post-sepsis community in mind. I am actually interested to hear more from their hypothesis (i will have to read the paper)- for me it...

Did anyone notice that dr Levine picked patients meeting the Fukuda criteria? This is unusual unless they used a cohort of patients whose blood was sitting in the freezer for a while

Oh really?!? :grumpy: He seems to try to describe central sensitization. He is dancing between what he really thinks (psychosomatic) and the fact that he can’t quite say that publicly. He is also quite aware that lots of funding will be made available to examine the immune abnormalities of his...

I am very curious about the FM control group. There is a great deal of overlap between the 2 diseases, so one would have to ensure that the FM group is not either misdiagnosed or living with both, including PEM. it is not unheard of that at the family practice level, physicians calls ME...

What if a biomarker is found? Well the study needs to be peer-reviewed and published, and then the work needs to be validated and replicated.

I suspect that Greenhalgh may have simply looked up certain hashtags and moved on to block all using the hashtag, not unlike the previous guy who did that too, i can’t remember who it was. I also suspect that she may have been recommended to do so by other ME- or SMC related researchers.

I have never interacted with her and i am blocked. Wow. Talk about being militant! My twitter account is not used to target people.

I send my best withes to Paul Garner, with the hope he maintains his recovery over time, and that he will not spontaneously relapse down the road, or having a second hit that sends him back to the ME pool. i take offence by the comment he made in regards to not having psychological problems...

You are providing very valuable information, thank you so much. May I ask how much you paid for the course?

If the numbers look too good to be true, well maybe they are. Then you see zebra everywhere, and you forget that you are in the zebra exhibit of the safari park :rolleyes: and you fail to see people wearing zebra costumes gallivanting in said exhibit

I am reading the paper. This made me stop reading. Selection bias? A group of patients who were engaged in design of the study went back to their community to let them know there was a study on hypermobility and ME and or FM. if the recruitment was done on successive patients presenting in a...

People tend to believe in books they purchase on Amazon, even though its content is not peer reviewed. Witch hunts like you would never believe. My father falls for this all the time, in the hope to cure his diabetes. (No carb, vegan, paleo, just cabbage soup). Patients still recommend all kinds...