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    NICE ME/CFS draft guideline - publication dates and delays 2020

    Like everyone else I would love to see the guidelines changed, or at least have a warning slapped on them ASAP. However I also see the reasons outlined y @adambeyoncelowe and @Andy why this isn't likely and could cause further problems if due process isn't followed. Years back physicians had a...
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    Miranda Hart - British comedian

    I agree, but I can also understand it. In the early days when my condition was milder I would have been keen to focus on efforts to keep me in work. I thought work focussed rehab could only be a good thing. That was before I understood about illness denial and that there comes a point of...
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    Resources for help getting food during quarantine and safe handling of food

    I will say that in my time I have occasionally been behind the scenes in a few reputable food processing plants in the UK. The standards of hygiene are very high as are the consequences legal & financial consequences for a company that doesn't maintain them.
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    Resources for help getting food during quarantine and safe handling of food

    I'm somewhere between @Esther12 and @JemPD in all this. Plus I have to factor in having a husband who has his own ideas. :rolleyes: I really don't want to catch it, but I have no idea what will happen if I do. Allergies aside I'm lucky my lungs are okay. I might have a very different...
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    Resources for help getting food during quarantine and safe handling of food

    No guarantees, but these bread products go through a very automated industrial process. Unlike the posher artisan breads, they don't have much by way of human contact. Apart from ingredients being hoicked into great vats the rest is pretty much automated as far as I know. Including packaging.
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    Resources for help getting food during quarantine and safe handling of food

    This is what the European Food Safety Standards have to say- https://www.efsa.europa.eu/en/news/coronavirus-no-evidence-food-source-or-transmission-route Not terribly specific. Isn't processed meat packaged in a protective environment? By which I mean it's not necessarily just air in the...
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    Coronavirus - worldwide spread and control

    i wonder did she hog a delivery slot or go out and buy it herself?
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    Why are assumptions passed off as established knowledge?, 2020, Weisman et al

    I know in my field of work assumptions tend to be made because they're convenient - i.e. I want the world to work a certain way so I'll assume it does. Made to test knowledge - we don't quite understand what's happening here so we'll assume x=y and try to break that assumption. If it proves...
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    UK - Resources for help getting food during quarantine and other supermarket related problems

    Maybe - but only if I can log in to Facebook to get the link for the group. The most infuriating thing is I have wasted sodding hours mucking about with it. To the point the day before yesterday that I overstimulated my brain & then couldn't sleep. Ah well. Hope the timings work out for you...
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    UK - Resources for help getting food during quarantine and other supermarket related problems

    Facebook - what a ......... Having wrecked my head trying resurrect an account to reach out to a Facebook only help group for my relatives, had my request to join that group bounced because the profile didn't look legit (well it wouldn't, it hadn't been used for years), PM'd an admin, been...
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    UK - Resources for help getting food during quarantine and other supermarket related problems

    Depending on dimensions extra freezers can make stylish corner tables, especially when draped with a nice piece of fabric (don't cover the back and allow air circulation behind it obviously). Can be hand for putting stuff on - lamps, plants that kind of thing.
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    COMPASS - Navigating your long term condition - Moss-Morris project

    Yep. The longer this goes on the harder it is to excuse it as ignorance. This is long past the stage of wilful ignorance even.
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    UK: REGISTER AS A VULNERABLE PERSON TO GET CORONAVIRUS SUPPORT

    That's truly horrible. I'm so sorry you had to endure that. :hug:
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    UK - Resources for help getting food during quarantine and other supermarket related problems

    Yep. My area has an emergency number you can call, leave a message and they'll phone back. Or you can contact via facebook. My relatives in London - facebook only. They have as much chance of setting themselves up on Facebook as I have of running a marathon this afternoon! We managed to...
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    UK: REGISTER AS A VULNERABLE PERSON TO GET CORONAVIRUS SUPPORT

    That's really useful @lunarainbows :thumbup: Thanks for the info. I'm struggling as I'm trying to find information for relatives who live in Greater London, no IT skills - he's hopeless and confusion & brain fog caused by her brain tumour means she's locked herself out of all her accounts...
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    UK: REGISTER AS A VULNERABLE PERSON TO GET CORONAVIRUS SUPPORT

    Actually, I meant to ask.... Once you go on this register what happens then? Does anyone know? You give a phone number for call and texts. In my relatives case emails are out at the minute. They've not got a delivery account with a supermarket, on the grounds it did them good to get out...
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    UK: REGISTER AS A VULNERABLE PERSON TO GET CORONAVIRUS SUPPORT

    Yes I know. That's exactly my point. Any resources that a vulnerable person might have found handy have been steadily closed and cut back until virtually nothing remains. Any that might still remain can't see anyone in person and are completely overwhelmed. The weak and vulnerable just...
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    UK: REGISTER AS A VULNERABLE PERSON TO GET CORONAVIRUS SUPPORT

    Exactly. She's just been operated on for stage 4 cancer. I'm not even sure they're going to put her through chemo. His lung condition isn't going to get better. Both of then just under 65. The system depends on them and everyone else coming forward. A great number of people just don't know...
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