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POTS can be diagnosed with a tilt table test. ME/CFS is associated with an inability to repeat the results on 2-day cardiopulmonary exercise testing. We don't know if this is unique to ME/CFS. In my opinion you don't need a 2-day CPET to recognize PEM. It would just cost money and be...

:D

Nice shark. Out of curiosity, do you know why they repeated the experiment with heated plasma? Was it important to prove that it's a biological agent?

That would fit with my case. Before a more definite onset, there was a prodromal phase lasting a few years with occasional weird symptoms, and that began approximately at the time I was given hepatitis B immunizations. It was 20 years ago so I don't remember the details unfortunately.

Yet another comment I can believe that conversion syndrome resembles ME/CFS because it's just one of the many labels that get applied to patients with illness nobody understands yet. Conversion syndrome however implies that the origin is emotional when there is no way I can see to prove or...

Another comment The idea that being a father to and living in the same household as a patient would make someone an unreliable researcher isn't very convincing. What they really want to say here I suspect is that they simply don't like that someone believes ME/CFS is a serious organic...

One comment says Obtaining a complete separation of ME/CFS patients and controls on a biological measure is actually very difficult. I'm not sure any clear separation like the in nanoneedle results have been reported before in ME/CFS.

It's being discussed on the medicine subreddit. Always interesting to see how they react to this kind of news.

The cumulative and possibly delayed effect suggests that it's more a problem of sustainability than an inability to generate energy (although that is also present). Maybe the problem with energy generation is increased oxidative stress, and PEM is a way to force us to minimize exertion while...

If you said to a person that knows little about ME/CFS: Many things written about ME/CFS in textbooks and published peer reviewed science papers are false, doctors hold misconceptions about the illness, Cochrane and The Lancet are biased and wrong, there is no reason to believe patients can...

It's just annoying that the same people who publish and/or defend harmful junk science then caution again overoptimism.

Is it possible doctors deny the patient's reality because they cannot emotionally handle how awful and devastating chronic illness is?

Check here https://www.ncbi.nlm.nih.gov/pubmed/2553945 I think that initially the motivation behind the psychologization of ME and CFS was to make it easier to deny medical treatment and disability benefits to patients. This is why they insist that there is no organic abnormality and that the...

In the late 80's he and a few others promoted the belief that CFS is a state of deconditioning and unhelpful illness beliefs. This had a catastrophic effect on patients. It also led to the development of CBT and GET. Nowadays Wessely likes to claim that he's retired from CFS research but he is a...

Credulous belief in psychogenic illness destroys lives. Society hasn't yet learned the lesson and thinks psychologies explanations and therapies cannot really harm. It's also a problem that the people promoting these psychogenic narratives seem to have little interest in whether their ideas are...

Vogt and that cardiologist demonstrate why we need an diagnostic test: to put an end to the baseless psychogenic illness theories.

Or maybe because you're studying mostly people that will get better within a year and never develop CFS. The comment about expectancies also reveals they're in the school of thought where patients are blamed at every opportunity.

This is not a validated measure of PEM. Maybe they didn't find differences between diagnostic criteria because they didn't use them properly?

In principle, the idea of following patients with EBV infection and taking blood for some tests seems a good one. They say that but I cannot find data on how many met different CFS diagnostic criteria. It seems plausible that CFS is not the same thing as post-EBV chronic fatigue (which as far...

This was today. Any news?