A Norwegian news site for research has written an article about the music therapy study. The journalist is Ingrid Spilde who has written several good articles about ME research before (including the PACE trial). It seems she's actually read the study and sees through the spin. Wyller is...
Here's a presentation of Simone Ragavooloo, the Research Integrity Coordinator from BMJ:
With formal academic qualifications in biological sciences and extensive experience across both the production and editorial branches of Science, Technology, Engineering and Mathematics (STEM) publishing...
Trial By Error: BMJ Responds to Appeals About Norway's CBT-Music Therapy Study
This morning, I received a message from BMJ’s “research integrity coordinator.” Hm. That seems like an important position at BMJ, given what appears to be a major lack of research integrity in some of the papers I...
Merged thread
ME conference on PEM 14-15th Oct 2020
The Swedish patient organisation RME is organising an ME conference about PEM.
14th October in Stockholm
15th October in Malmö
Lecturers
Prof. Kristian Sommerfelt - University in Bergen, Norway
Prof. Betsy Keller - Ithaca College, USA
Dr...
Wyller has written a reply to an opinion piece by Sigmund Olafsen (shared in the News from Scandinavia thread here). Once again he defends the research supporting CBT as treatment for ME and even Lightning Process.
Claim # 1 - on lack of results - is easily refuted by a quick search in PubMed...
Nina E. Steinkopf has taken a further look into rulings in the National Insurance Court in Norway regarding benefits for patients with ME.
It's heart breaking to read these rulings. about how ill the patients are and about everything they've tried, yet the court believes more treatment, as CBT...
Uppsala University with article about prof. Jonas Bergquist who is going to investigate samples from Covid-19 patients and believes this may provide important information for research into ME. He also talks a bit about how the pandemic has affected ME patients
- Today, in ME patients, we are...
The Norwegian ME Association has a guest blog from father to a son who suffers from ME. He tells how he regrets following prof Wyller's advice on trying Lightning Process as treatment. The father is a therapist himself with additional education in cognitive theory and thought LP was the same as...
Swedish media reports that the whistle blowers in the Macchiarini case are now seeking compensation.
The so-called whistleblowers in the Macchiarini scandal at Karolinska Institutet are now demanding compensation from the state. These are the researchers who alerted that the surgeon Paolo...
Risk factors for suicide in chronic fatigue syndrome
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) includes symptoms such as post-exertional malaise, unrefreshing sleep, and cognitive impairments. Several studies suggest these patients have an increased risk of suicidal ideation...
My apologies! This is already discussed here:
https://www.s4me.info/threads/independent-advisory-group-for-the-full-update-of-the-cochrane-review-on-exercise-therapy-and-me-cfs-2020-led-by-hilda-bastian.13645/page-11#post-262491
I saw it on Facebook today and thought it would be news on this...
https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD003200.pub8/information#whatsNew
Date
Event
Description
21 May 2020
Amended
Addition of the following text to the beginning of the Abstract, 'A statement from the Editor in Chief about this review and its planned update is...
I'm sceptical when they start selling before providing documentation regarding effect, but nothing would be better than if it really turns out to be helpful for some. Just show us some evidence before asking for money, please.
More information from 17th Jan 2020 from CORDIS (The Community and Research and Development Information Service), the European Commission's primary source of results from the projects funded by the EU's framework programmes for research and innovation.
Evidence-based probiotic for Chronic...
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