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  1. Kalliope

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    A Norwegian news site for research has written an article about the music therapy study. The journalist is Ingrid Spilde who has written several good articles about ME research before (including the PACE trial). It seems she's actually read the study and sees through the spin. Wyller is...
  2. Kalliope

    Sweden - RME news

    I was wondering the same, but now I see he's going to attend via video
  3. Kalliope

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    Here's a presentation of Simone Ragavooloo, the Research Integrity Coordinator from BMJ: With formal academic qualifications in biological sciences and extensive experience across both the production and editorial branches of Science, Technology, Engineering and Mathematics (STEM) publishing...
  4. Kalliope

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    Trial By Error: BMJ Responds to Appeals About Norway's CBT-Music Therapy Study This morning, I received a message from BMJ’s “research integrity coordinator.” Hm. That seems like an important position at BMJ, given what appears to be a major lack of research integrity in some of the papers I...
  5. Kalliope

    Sweden - RME news

    Merged thread ME conference on PEM 14-15th Oct 2020 The Swedish patient organisation RME is organising an ME conference about PEM. 14th October in Stockholm 15th October in Malmö Lecturers Prof. Kristian Sommerfelt - University in Bergen, Norway Prof. Betsy Keller - Ithaca College, USA Dr...
  6. Kalliope

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    Wyller has written a reply to an opinion piece by Sigmund Olafsen (shared in the News from Scandinavia thread here). Once again he defends the research supporting CBT as treatment for ME and even Lightning Process. Claim # 1 - on lack of results - is easily refuted by a quick search in PubMed...
  7. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    OMF has translated the interview into English Covid-19 and ME News Flash from Uppsala
  8. Kalliope

    News from Scandinavia

    Nina E. Steinkopf has taken a further look into rulings in the National Insurance Court in Norway regarding benefits for patients with ME. It's heart breaking to read these rulings. about how ill the patients are and about everything they've tried, yet the court believes more treatment, as CBT...
  9. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Uppsala University with article about prof. Jonas Bergquist who is going to investigate samples from Covid-19 patients and believes this may provide important information for research into ME. He also talks a bit about how the pandemic has affected ME patients - Today, in ME patients, we are...
  10. Kalliope

    News from Scandinavia

    The Norwegian ME Association has a guest blog from father to a son who suffers from ME. He tells how he regrets following prof Wyller's advice on trying Lightning Process as treatment. The father is a therapist himself with additional education in cognitive theory and thought LP was the same as...
  11. Kalliope

    Swedish Central Ethics Review Board finds Macchiarini guilty of misconduct, requests retraction of 6

    Swedish media reports that the whistle blowers in the Macchiarini case are now seeking compensation. The so-called whistleblowers in the Macchiarini scandal at Karolinska Institutet are now demanding compensation from the state. These are the researchers who alerted that the surgeon Paolo...
  12. Kalliope

    Death Studies: Risk factors for suicide in chronic fatigue syndrome - 2020 - Johnson, Jason et al

    Risk factors for suicide in chronic fatigue syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) includes symptoms such as post-exertional malaise, unrefreshing sleep, and cognitive impairments. Several studies suggest these patients have an increased risk of suicidal ideation...
  13. Kalliope

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome', Larun et al. - New version October 2019 and new date December 2024

    My apologies! This is already discussed here: https://www.s4me.info/threads/independent-advisory-group-for-the-full-update-of-the-cochrane-review-on-exercise-therapy-and-me-cfs-2020-led-by-hilda-bastian.13645/page-11#post-262491 I saw it on Facebook today and thought it would be news on this...
  14. Kalliope

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome', Larun et al. - New version October 2019 and new date December 2024

    https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD003200.pub8/information#whatsNew Date Event Description 21 May 2020 Amended Addition of the following text to the beginning of the Abstract, 'A statement from the Editor in Chief about this review and its planned update is...
  15. Kalliope

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome', Larun et al. - New version October 2019 and new date December 2024

    There's an update from May 21st 2020 https://www.cochrane.org/CD003200/DEPRESSN_exercise-treatment-adults-chronic-fatigue-syndrome
  16. Kalliope

    Probiotics for ME/CFS and IBS, Julin et al, Stora Sköndal (Sweden)

    I'm sceptical when they start selling before providing documentation regarding effect, but nothing would be better than if it really turns out to be helpful for some. Just show us some evidence before asking for money, please.
  17. Kalliope

    Probiotics for ME/CFS and IBS, Julin et al, Stora Sköndal (Sweden)

    More information from 17th Jan 2020 from CORDIS (The Community and Research and Development Information Service), the European Commission's primary source of results from the projects funded by the EU's framework programmes for research and innovation. Evidence-based probiotic for Chronic...
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