Search results

Amazing how much info you are able to communicate in your videos @Adam pwme A summary of the whole ME saga in seven minutes is quite a deed!

As for now, there's no indication that the article has had any updates since it first got published 16th of May.

It's not spelled differently and they even misspelled it twice.. It's a well known university here, and the Crown Prince of Norway is listed among Berkeley's Notable Alumni (1999).

ETA: He shares links to other articles too

A sentence about @dave30th has now been added to the article (my bold). NAFKAM-direktør Jong forteller til Dagbladet at grunnlaget deres for ikke å ta hensyn til LP-studien fra 2018, er at studien har vært kritisert av et tjuetalls forskere. Som bevis for dette, viser hun til et innlegg på den...

Dear Joan Crawford and Dionne Joseph. Thank you SO much for this. It means the world when also professionals are speaking up to show that this is not a conflict between ME patients and health care workers. Your letter was splendid and is much appreciated!

Agree. It's as if they believe that it's people who are sceptical of LP that are responsible for it not working for everyone.

Dagbladet has published an opinion piece from Recovery Norge in support of the LP study. We believe it is worrying that individuals and organizations are trying to stop and influence research and that researchers who are not perceived to contribute to a "right view" are being worked against. ME...

The editor from Dagbladet writes: But of course, we fully understand that your academic background is relevant regarding this topic, so we have updated the key information about your academic credentials. But as for now, there doesn't seem to have been any changes/updates of the article. Here...

Tuller finally received a response from Dagbladet, and sent quite some reply! Trial by Error: A response from Dagbladet Your reporter and your news organization appear to have launched this project with a built-in bias. The decision to present such a one-sided portrait of the dispute represents...

Chairman of the Norwegian ME Association, Bjørn K. Getz Wold wrote a good response to Dagbladet and their recent coverage about the "ME war". A pity they didn't want to publish it, but it's available on the association's website. Contrary to Dagbladet, we believe it is high time that ME...

The Norwegian ME Association has asked the Norwegian Institute of Public Health (FHI) a few questions. Among other about the institute's support of Live Landmarks LP study. They received an answer 1st of April written by the director herself, Camilla Stoltenberg and Centre Director Per Magnus...

Only had a brief look when I saw Retraction Watch sharing it earlier today on twitter. Seems to drag ME patients into the conspiracies :(

Blog post from Nina E. Steinkopf Wyller's hypothesis from 2007 is that CFS / ME is a sustained arousal stress response and that personality, emotions and psychological trauma contribute to the development of the disease. The hypothesis is still not proved. Here is an overview of 39 scientific...

The Swedish newspaper Expressen had yesterday an article about 27 year old Sofia who suffers from Ehler-Danlos syndrome and ME, but wasn't correctly diagnosed until she moved to Stockholm. She talks about a life with a lot of pain and wrong treatments until she finally met a doctor who gave...

Signe Flottorp, research director at the Norwegian Institute of Public Health (FHI) sent a letter to the Norway's National Research Center in Complementary and Alternative Medicine (NAFKAM) in April this year, before the Dagbladet article. In the letter she asked them to retract and apologise...

Jørn Tore Haugen has written a letter to Dagbladet criticising their article. It's also available as a guest blog at Sissel Sunde's blog "Life With ME By Sissel". The letter is available in both Norwegian and English. Simplifying, one can say that Wyller, Flottorp, etc. builds their line of...

chef’s kiss [ shefs kis ] WHAT DOES CHEF'S KISS MEAN? Chef's kiss is a gesture and expression meant to show something is perfect or excellent. The gesture is made by pinching the fingers and thumb of one hand together (often in an OK sign), kissing them, and then tossing them dramatically away...