Search results

Assuming the scales etc really measured suggestibility (which is a big assumption), I think this might say more about the nature of people willing to participate in these studies and be labeled as having 'previously referred to as hysteria, and also known as conversion disorder, functional...

I've mentioned elsewhere the example in my city (outside the UK) of a service hub in a nice accessible building for people with neurological conditions. So that includes people with Parkinsons, MS, autism, dementia, traumatic brain injury... The plan is that patient support charities share...

The article is readable and interesting. It's not exactly clear that the researcher mentioned in the article has yet recovered, although he is attributing his ongoing effects first to damage to his red blood cells (which should be corrected when there are new red blood cells) and now...

This is the red blood cell paper referred to in the article: Evidence of Structural Protein Damage and Membrane Lipid Remodeling in Red Blood Cells from COVID-19 Patients https://pubs.acs.org/doi/10.1021/acs.jproteome.0c00606 Abstract The SARS-CoV-2 beta coronavirus is the etiological...

I haven't read the study yet, but assuming the finding is correct, there's faster breathing in PEM Factors that affect breathing rate: age, gender, size and weight, exercise, anxiety, pain, the effect of some medicines, smoking habits and excitement level, infections, sepsis The pain of PEM...

A series of posts about PEM in young people have been moved here: Defining and Measuring Post-Exertional Malaise - a discussion

The UK Science Media Centre has been a hotbed of BPS support. It has close ties with BPS proponents; I think Wessely has been on the board? It is regularly commented on in this forum. It often/usually seems to be a PR machine, rather than having any commitment to increasing understanding of...

This is really nasty stuff. There's lots about catastrophising and yet, in a paper on sleep problems, it says nothing about how many hours the young people were sleeping - so nothing about hypersomnia. I wish funders would stop giving these people money to do what is essentially a campaign...

Interview with Jonas Bergquist - thread here: Interview with ME researcher Jonas Bergquist Nov 2020

Posts about a blog psychologising Long Covid have been moved here: https://www.s4me.info/threads/bps-attempts-at-psychologizing-longcovid.16013/page-18#post-302867 A post about a $1 million grant to OMF to fund a study of ME/CFS after Covid-19 has been moved here...

Yes, if you are interested and able, come over to this thread, and join the conversation about how ME diagnosis, care planning and care delivery should be organised...

Wow, registration is 250 pounds. That's enormous for a 2 day virtual conference. Some of the presentations sound a bit interesting.

"Question 29 Who would you like to co-ordinate the management of your illness? The GP, followed by a combination of GP and consultant physician, was the most preferred for co-ordination. A psychologist or psychiatrist was the least preferred. The answers given to Questions 29-32 are fully...

People in this survey were actually quite keen for dietary advice - which surprises me a bit. They were a lot keener for counselling than CBT. (I'm just sliding on past the enthusiasm for alternative therapies - but it is interesting to compare that with the desire for CBT and GET.)

'Results of probably the largest-ever survey of opinion among people with ME/CFS and their carers about what treatments and therapies work for them and what don’t are available for downloading. The link to the PDF is at the bottom of this story. The survey also shows what people with the...

A number of posts about UK NHS Long Covid clinics have been moved here: https://www.s4me.info/threads/uk-nhs-england-online-tool-and-clinics-for-long-covid.15790/

Here are the relevant bits from the very long article quoted in the original post: How is long Covid treated? Treatment is a thorny area when it comes to conditions where biological causes are undetermined. For ME/CFS and PVFS, it’s the reason there can be so much misunderstanding among the...

Re the SMC reaction: Crawley's endorsement of the Lightning Process made it very clear that the standard BPS trial approach of subjective outcomes and unblinded treatments could make even standing on a paper circle saying 'stop' look like a reasonable treatment. That Smile Trial should have...