Search results

Yes, I do think HealthInfo probably underestimates the public with the level they pitch things at. But yes, there's probably not a lot of harm in that so long as there are links.

:) It takes me a while. And then I mostly forget. And so it takes a bit longer.

The new HealthInfo entry on ME/CFS is up - link here HealthPathways, RACP & NICE guidelines - how do they fit together?

The new version of HealthInfo is up, replacing the old version. There's a random 'CFS' that will be fixed and not everything is precisely as I would have wished but I think it's reasonable. The illness names is ME/CFS. There are links to the CDC information, Emerge (@Simone), MEAwareness and...

It's all sounding a bit random. When I was told to stop I was certainly not thinking 'this is the hardest exercise I have ever done in my life', not even close. Maybe the ventilatory threshold is where we should be looking for differences, given the VO2 peak is assessed on such moveable...

I find that a little bit patronising, but perhaps I'm in a prickly mood this morning. Edit - probably mostly just me in a prickly mood - I'm glad that it's a paid position.

This quote is from the 2018 Nielsen 48 and 72 hour 2xCPET study (Hodges) Maybe that is why the Workwell people don't use heart rate as one of the criteria for maximal effort? I just thought the percentages of people who got to RER=1.1 seemed really low across the board in this Falvo study -...

What do you reckon was going on with the failure to meet valid peak effort @Snow Leopard? It looked like lots of the participants failed, both GWS and controls. I wouldn't have thought that was normal.

I haven't read the paper. The abstract has some good points. It gets the causal inference of 'pain>> reduced quality of life' right (even if, as Midnattsol has noted, the actual article is not so good about this). I also like that it has separated out the pressure pain thresholds from other...

Diane, you are still not hearing us. I understand that your letter did not explicitly say that the Sharpe/Wessely construct is credible. Nevertheless, that is the meaning that many readers of it would take away. To be clear as I can be, clinicians who want to put a psychosomatic label on...

My reading of this thread is that comments have been focused on one rather big objection - many people have CFS as a diagnosis, many medical professionals only use the CFS term (even those who are convinced there is a biological cause), many researchers (even those researching biological...

A large number of posts about the names 'CFS' and 'ME/CFS' have been moved to Diagnosis of ME and the use of the labels ME and CFS.

This thread is closed for the rest of the weekend, due to the availability of moderators. Apologies for any inconvenience. This thread is now open for on-topic replies.

Merged thread There's a reference quoted for this statement - I doubt it survives close examination. I think it's an extremely small percentage of people with ME/CFS who see a medical professional over 20 times a year. Maybe in the first year, although you'd have to be both extraordinarily...

This thread is closed, just for the weekend, to give moderators and members a break. The thread is open again.

This thread is closed, just for the weekend, to give moderators and members a break. The thread is open again.

Thanks for that very helpful summary @Michiel Tack Great that Shan is proposing objective measurement of activity. Re the collaborative neuroimaging databank for ME/CFS. That sounds good. Even just a neuroimaging databank for a range of controls would be a start - along with a whole lot of...

Please keep posts in this thread at least somewhat focused on the Bragée et al paper. More general discussions related to spinal issues and ME, especially those related to how ideas are communicated and promoted should be made elsewhere so that conversations aren't repeated. The science of...

Hard to go past a paper with a title like that. But I haven't got to the taste bits yet, still stuck on the suggestions of the first paragraph. The paper starts off with a description of all the emotional processing inadequacies of people with functional motor disorders often associated with...

For new members, just a reminder that if you think a post breaches a rule, you can report it by clicking on the 'contact moderators' below the post. Moderators communicate with individual members using the conversation facility - check the 'inbox' at the top right of your screen.